Bailoor Kunal, Kamil Leslie H, Goldman Ed, Napiewocki Laura M, Winiarski Denise, Vercler Christian J, Shuman Andrew G
University of Michigan Medical School, 1904 Taubman Center, 1500 E Medical Center Drive, Ann Arbor, MI, 48109, USA.
J Bioeth Inq. 2018 Jun;15(2):185-191. doi: 10.1007/s11673-018-9848-7. Epub 2018 Mar 17.
Advance care planning allows patients to articulate preferences for their medical treatment, lifestyle, and surrogate decision-makers in order to anticipate and mitigate their potential loss of decision-making capacity. Written advance directives are often emphasized in this regard. While these directives contain important information, there are several barriers to consider: veracity and accuracy of surrogate decision-makers in making choices consistent with the substituted judgement standard, state-to-state variability in regulations, literacy issues, lack of access to legal resources, lack of understanding of medical options, and cultural disparities. Given these issues, it is vital to increase the use of patient and healthcare provider conversations as an advance care planning tool and to increase integration of such discourse into advance care planning policy as adjuncts and complements to written advance directives. This paper reviews current legislation about written advance directives and dissects how documentation of spoken interactions might be integrated and considered. We discuss specific institutional policy changes required to facilitate implementation. Finally, we explore the ethical issues surrounding the increased usage and recognition of clinician-patient conversations in advance care planning.
预先护理计划使患者能够阐明其对医疗治疗、生活方式和替代决策者的偏好,以便预测并减轻其潜在的决策能力丧失。在这方面,书面预先指令常受到强调。虽然这些指令包含重要信息,但有几个障碍需要考虑:替代决策者在做出符合替代判断标准的选择时的真实性和准确性、各州法规的差异、文化水平问题、缺乏获取法律资源的途径、对医疗选择的理解不足以及文化差异。鉴于这些问题,增加使用患者与医疗保健提供者之间的对话作为预先护理计划工具,并将此类对话更多地纳入预先护理计划政策,作为书面预先指令的辅助和补充,至关重要。本文回顾了关于书面预先指令的现行立法,并剖析了如何整合和考虑口头互动的记录。我们讨论了促进实施所需的具体机构政策变化。最后,我们探讨了在预先护理计划中增加使用和认可医患对话所涉及的伦理问题。