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在与残疾青年接触时促进选择:来自共同研究者培训的反思

Facilitating choice when engaging young people with disabilities: reflections from co-researcher training.

作者信息

Nicholson Emma, Mimmo Laurel, Christophers Lauren, Costa Sa Maria Elena, MacKeogh Trish

机构信息

School of Psychology, Faculty of Health and Science, Dublin City University, Glasnevin Campus, Dublin 9, Ireland.

Sydney Children's Hospital Network, High St, Randwick, NSW, 2031, Australia.

出版信息

Res Involv Engagem. 2024 Aug 26;10(1):90. doi: 10.1186/s40900-024-00626-7.

DOI:10.1186/s40900-024-00626-7
PMID:39187898
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11348645/
Abstract

BACKGROUND

A collaborative approach is critical in inclusive research and should incorporate taking time to build relationships with co-researchers based on trust and shared understanding. Involvement can often be seen as tokenistic and in order to avoid this, it is important to provide opportunities for people to exercise choice throughout the research process.

MAIN BODY

The current paper outlines learnings from a co-researcher training process for young people with disabilities to identify the ways in which meaningful choice can be facilitated with this group. While conducting training of co-researchers in topics such as research methods, we were continuously led by the group with regards to the directions that the sessions took and promoted problem solving with the group to accommodate the unique needs of all members. The overall aim of a wider project was to develop research capacity in a group of young people with disabilities through co-researcher training and this paper will report on learnings from this work with regards to how we sought to provide opportunities for the co-researchers to exercise choice within research projects. Feedback from the group of young people highlighted the variety of needs and expectations that must be accommodated in such a process and therefore, allowing them to dictate the extent and manner of their engagement is key. Young people with disabilities are a heterogeneous group and therefore, some methodologies and ways of working required adaptation in order to facilitate meaningful choice and engagement for all.

CONCLUSION

Providing meaningful opportunities for demonstrating their choices, in relation to elements of research projects, is a critical component of facilitating a rights-based approach when conducting co-research and requires researchers to cede some level of control over the research process to co-researchers. This can be difficult to achieve in practice and researchers must continuously reflect on their own practice and be willing to change and adapt throughout the process.

摘要

背景

合作方法在包容性研究中至关重要,应包括花时间与共同研究者建立基于信任和共同理解的关系。参与往往可能被视为形式主义,为避免这一点,在整个研究过程中为人们提供行使选择权的机会很重要。

主体

本文概述了针对残疾青年的共同研究者培训过程中的经验教训,以确定促进该群体做出有意义选择的方法。在对共同研究者进行研究方法等主题的培训时,我们在课程方向上不断受到该群体的引导,并推动与该群体共同解决问题,以满足所有成员的独特需求。一个更广泛项目的总体目标是通过共同研究者培训培养一群残疾青年的研究能力,本文将报告这项工作中关于我们如何寻求为共同研究者在研究项目中提供行使选择权机会的经验教训。残疾青年群体的反馈突出了在这样一个过程中必须满足的各种需求和期望,因此,让他们决定参与的程度和方式是关键。残疾青年是一个异质性群体,因此,一些方法和工作方式需要调整,以便为所有人促进有意义的选择和参与。

结论

在开展合作研究时,就研究项目的要素提供展示其选择的有意义机会,是促进基于权利方法的关键组成部分,这要求研究人员在一定程度上放弃对研究过程的控制权给共同研究者。这在实践中可能难以实现,研究人员必须不断反思自己的实践,并愿意在整个过程中改变和调整。

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