Cerda-Aedo Bárbara
Universidad Adventista de Chile, Dirección de Posgrado e Investigación, Chillán, Chile.
Universidad Internacional de la Rioja, Logroño, España.
Dement Neuropsychol. 2024 Aug 26;18:e20220112. doi: 10.1590/1980-5764-DN-2022-0112. eCollection 2024.
Today, talking about autism spectrum disorder (ASD) is the same as talking about cases that occur in one in 160 births worldwide. Some of them will be able to live independently when they grow up while others will have less autonomy and will be more dependent, requiring the support of caregivers throughout their lives.
Understanding the emotional burden that this could generate on parents, we sought to analyze the level of stress and coping techniques in caregivers of children with ASD in Chile, 2021.
Interview with a sample composed of 61 parents or guardians of people with ASD.
After data analysis, it was possible to perform a statistically significant correlation (p=0.002) between the level of stress and the coping strategies (problem-solving, self-criticism, emotional expression, wishful thinking, social support, cognitive restructuring, problem avoidance, and social withdrawal). In addition, positive strategies that reduce stress levels in parents or caregivers of children with ASD were identified (problem resolution, cognitive restructuring, social support, and emotional expression).
Through this research, it was possible to respond to each of the stated objectives, managing to determine what were the characteristics of caregivers and their main difficulties. It was also observed that the majority lost the possibility of working to dedicate themselves to the care of the diagnosed person.
如今,谈论自闭症谱系障碍(ASD)就如同谈论全球每160例出生中就会出现1例的情况。他们中的一些人长大后能够独立生活,而另一些人自主性较差,依赖性更强,一生都需要照料者的支持。
为了解这可能给父母带来的情感负担,我们试图分析2021年智利自闭症谱系障碍儿童照料者的压力水平和应对技巧。
对由61名自闭症谱系障碍患者的父母或监护人组成的样本进行访谈。
数据分析后发现,压力水平与应对策略(解决问题、自我批评、情绪表达、如意算盘、社会支持、认知重构、问题回避和社交退缩)之间存在统计学上的显著相关性(p = 0.002)。此外,还确定了能降低自闭症谱系障碍儿童父母或照料者压力水平的积极策略(解决问题、认知重构、社会支持和情绪表达)。
通过这项研究,得以回应上述各项研究目的,成功确定了照料者的特征及其主要困难。还观察到,大多数人失去了工作的可能性,全身心投入到对确诊患者的照料中。