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南非林波波省自闭症儿童照料者所采用的应对策略。

Coping strategies adopted by caregivers of children with autism in the Limpopo Province, South Africa.

作者信息

Sumbane Gsakani O

机构信息

School of Medicine, Faculty of Health Sciences, University of Limpopo, Polokwane, South Africa.

出版信息

Afr J Disabil. 2024 Sep 30;13:1384. doi: 10.4102/ajod.v13i0.1384. eCollection 2024.

Abstract

BACKGROUND

Emotion- and problem-focused coping strategies are frequently employed by caregivers of autistic children to increase their general well-being and resilience to the stress of raising the child. Although these strategies cannot directly address the situation, it is useful for handling stressful situations that cannot change.

OBJECTIVES

The study seeks to explore and understand the emotion- and problem-focused strategies that caregivers use to cope with the challenges of raising a child with autism.

METHOD

This was a qualitative, exploratory and descriptive research study. Twenty-eight caregivers were purposive-convenient sampled from the public special schools where their autism spectrum disorder (ASD) children are schooling. Semi-structured interviews were used to gather data, which were then transcribed and subjected to thematic analysis.

RESULTS

Positive emotion-focused strategies include positive reappraisal, reframing and acceptance. Negative emotion-focused strategies include denial, emotional release, cognitive distortion, self-isolation, overprotection, negative self-talk, punishment and religion. Problem-focused coping strategies include active and adaptive coping, peer group, professional support and social support.

CONCLUSION

The coping methods that have been identified can be integrated into intervention programmes and serve as a guide for specialised institutions that offer more extensive knowledge and assistance to families who are caring for children with ASD.

CONTRIBUTION

The study contributes to understanding the emotion- and problem-focused strategies adopted by rural caregivers in managing their emotions, interpretation of the situation and adjusting to the demands of raising an autistic child.

摘要

背景

自闭症儿童的照料者经常采用以情绪为中心和以问题为中心的应对策略,以提高他们的总体幸福感,并增强应对养育孩子压力的能力。虽然这些策略不能直接解决实际情况,但对于处理无法改变的压力状况很有用。

目的

本研究旨在探索和了解照料者用来应对养育自闭症儿童挑战的以情绪为中心和以问题为中心的策略。

方法

这是一项定性、探索性和描述性的研究。从其自闭症谱系障碍(ASD)儿童就读的公立特殊学校中,有目的地便利抽样选取了28名照料者。采用半结构化访谈收集数据,然后进行转录并进行主题分析。

结果

以积极情绪为中心的策略包括积极重新评价、重新构建和接纳。以消极情绪为中心的策略包括否认、情绪释放、认知扭曲、自我孤立、过度保护、消极的自我对话、惩罚和宗教。以问题为中心的应对策略包括积极和适应性应对、同龄人群体、专业支持和社会支持。

结论

已确定的应对方法可以纳入干预计划,并为向照料自闭症儿童的家庭提供更广泛知识和帮助的专门机构提供指导。

贡献

本研究有助于理解农村照料者在管理自己的情绪、解读情况以及适应养育自闭症儿童的需求时所采用的以情绪为中心和以问题为中心的策略。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/adda/11447578/c94223a2c82a/AJOD-13-1384-g001.jpg

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