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采用同理心方法探索技术准备情况和对数字服务的需求,以帮助痴呆症患者。

Using an Empathetic Approach to Explore Technology Readiness and Needs for Digital Services to Assist People with Dementia.

机构信息

Department of Public Health, Faculty of Health and Medical Sciences, University of Copenhagen, Øster Farimagsgade 5, 1353 Copenhagen K, Denmark.

出版信息

Int J Environ Res Public Health. 2024 Aug 2;21(8):1023. doi: 10.3390/ijerph21081023.

Abstract

This qualitative study investigates technology readiness, i.e., self-management, social support, and digital health literacy, in people with dementia (PwD). PwD are difficult to recruit; therefore, we used an empathic approach to recruit and conduct interviews. The interviews with seven participants with dementia and two informal caregivers, guided by the READHY framework, reveal nuanced insights into their experiences. Participants demonstrate varying degrees of self-management, with informal caregivers playing pivotal roles in facilitating activities and supporting overall well-being. Cognitive challenges, such as concentration and communication difficulties, are prevalent, highlighting the importance of robust support systems. Internal and external support networks significantly influence social integration, yet societal misconceptions impede inclusion, exacerbating feelings of isolation for both participants and caregivers. Limited interaction with technology is observed, primarily reliant on caregivers for assistance. Technology may hold potential for enhancing independence and alleviating caregiver burden. As an empathetic approach eased recruitment and communication with PwD, we recommend using this approach for future studies to include participants who otherwise would not be recruited. Given that the number of participants in this study is limited to only seven PwD with moderate to severe cognitive impairment, further investigation using mixed methods, including the READHY framework, and a larger number of participants is needed to examine the generalizability of the findings.

摘要

本定性研究调查了痴呆症患者(PwD)的技术准备情况,即自我管理、社会支持和数字健康素养。招募痴呆症患者较为困难;因此,我们采用共情方法进行招募和访谈。对 7 名痴呆症患者和 2 名非正式照顾者的访谈,遵循 READHY 框架,深入了解了他们的体验。参与者表现出不同程度的自我管理能力,非正式照顾者在促进活动和支持整体幸福感方面发挥着关键作用。认知挑战,如注意力和沟通困难,普遍存在,突出了强大支持系统的重要性。内部和外部支持网络对社会融合有重大影响,但社会误解阻碍了包容,加剧了参与者和照顾者的孤立感。观察到与技术的有限互动,主要依赖于照顾者的帮助。技术可能具有增强独立性和减轻照顾者负担的潜力。由于共情方法便于与 PwD 进行招募和沟通,我们建议在未来的研究中使用这种方法来招募否则无法招募的参与者。由于本研究中只有 7 名认知障碍程度为中度至重度的 PwD 参与,因此需要使用混合方法(包括 READHY 框架)并增加更多参与者进行进一步研究,以检验研究结果的普遍性。

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