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银屑病患者在应激状态下对疾病的反应及应对策略:横断面研究

Reaction to Disease and Coping Strategies in Stressful Situations among Psoriasis Patients: Cross-Sectional Study.

作者信息

Kowalewska Beata, Milewska-Buzun Marta, Cybulski Mateusz, Szpakow Andriej, Khvorik Dzmitry, Sobolewski Marek, Aleksiejczuk Piotr, Niczyporuk Wiaczesław

机构信息

Department of Integrated Medical Care, Medical University of Bialystok, 15-096 Bialystok, Poland.

International Academy of Applied Sciences in Lomza, 18-402 Lomza, Poland.

出版信息

J Clin Med. 2024 Aug 9;13(16):4693. doi: 10.3390/jcm13164693.

Abstract

In the contemporary world, a cult of perfection is being created, and deviations from such an ideal image are becoming socially unacceptable. A particular situation arises when a defect or symptoms of a disease appear on the skin, which, in the case of people suffering from psoriasis, are a source of stress, dissatisfaction with the disease, and a reduction in quality of life. The aim of this study was to assess whether the quality of life related to the occurrence of psoriasis and the level of acceptance of the disease affect coping strategies in stressful situations. The study involved 111 people with common psoriasis (46.8% women and 53.2% men). Inclusion criteria were as follows: a diagnosis of common psoriasis for at least 0.5 years, no other types of psoriasis, no mental illnesses, and an informed consent of the respondent to participate in the study. In order to compile the research input, a proprietary questionnaire was used along with the following standardised tools: the Dermatology Life Quality Index (DLQI), the Acceptance of Illness Scale (AIS), and the Coping Inventory for Stressful Situations (CISS). The duration of the disease in the studied population varied and ranged from 0.5 years to over 50 years. Most respondents showed relatively low DLQI scores, with an average value of 10.8 points. In stressful situations (CISS), the respondents primarily used a strategy based on rational thinking (Task-oriented coping), with approximately 54 points on average; followed by an avoidant style (Avoidance-oriented coping), with approximately 50 points on average; and least often an emotional style (Emotion-oriented coping), with approximately 46 points on average. The average level of disease acceptance (AIS) in the studied group equalled approximately 26 points. Psoriatic lesions on the torso caused less rational behaviour in stressful situations (a decrease in the Task-oriented coping) in women but had the opposite result in men, whereas psoriatic lesions on the head stimulated the use of Task-oriented coping in women but had the opposite result in men. The higher the acceptance of the disease (AIS) presented by the respondents, the less often they used an emotional strategy (Emotion-oriented coping) in stressful situations. The higher the quality of life (DLQI) was, the lower the values of Emotion-oriented coping were noted.

摘要

在当代社会,一种对完美的崇拜正在形成,与这种理想形象的偏差正变得在社会上难以被接受。当皮肤出现疾病缺陷或症状时,就会出现一种特殊情况,对于银屑病患者来说,这些症状是压力、对疾病不满以及生活质量下降的根源。本研究的目的是评估与银屑病发生相关的生活质量以及对疾病的接受程度是否会影响应对压力情境的策略。该研究涉及111名寻常型银屑病患者(女性占46.8%,男性占53.2%)。纳入标准如下:寻常型银屑病诊断至少0.5年,无其他类型银屑病,无精神疾病,且受访者知情同意参与研究。为了编制研究资料,使用了一份自编问卷以及以下标准化工具:皮肤病生活质量指数(DLQI)、疾病接受量表(AIS)和压力情境应对量表(CISS)。研究人群中疾病持续时间各不相同,从0.5年到50多年不等。大多数受访者的DLQI得分相对较低,平均值为10.8分。在压力情境(CISS)中,受访者主要采用基于理性思考的策略(任务导向型应对),平均约54分;其次是回避型风格(回避导向型应对),平均约50分;最不常用的是情绪型风格(情绪导向型应对),平均约46分。研究组的疾病接受平均水平(AIS)约为26分。躯干上的银屑病皮损在压力情境中导致女性的理性行为减少(任务导向型应对减少),但在男性中结果相反,而头部的银屑病皮损促使女性使用任务导向型应对,但在男性中结果相反。受访者对疾病的接受程度(AIS)越高,在压力情境中使用情绪策略(情绪导向型应对)的频率就越低。生活质量(DLQI)越高,情绪导向型应对的得分就越低。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d485/11355611/f59c6d1d1ed0/jcm-13-04693-g001.jpg

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