Soliman Moetaza M
Department of Pharmacy Practice, Faculty of Pharmacy, Mansoura University, Mansoura, Egypt.
Postepy Dermatol Alergol. 2021 Oct;38(5):842-849. doi: 10.5114/ada.2020.95655. Epub 2020 Jun 8.
Acceptance of illness greatly affects the quality of life of psoriatic patients. Assessment of patients' need for education and support is very important for patients' counselling and follow-up.
To evaluate acceptance of illness and need for education to support dermatology self-care in Arabic patients with psoriasis.
A cross-sectional study using a survey was conducted. The survey collected patients' demographics, disease characteristics, Acceptance of Illness Scale (AIS) and Person-Centered Dermatology Self-Care Index (PeDeSI). Outcome measures were presented in total and in relation to age, gender, disease duration, disease severity, quality of life and level of education. The correlation between AIS and PeDeSI was examined using Spearman's rank correlation test.
In total, 209 psoriatic patients from 12 Arabic countries participated in the survey with mean ± SD age of 35.8 ±10.0 years. The median (IQR) AIS score was 28 (19-35). The median (IQR) of the PeDeSI score was 15 (11-22). Both AIS and PeDeSI did not differ in relation to age, gender, disease duration, and level of education. However, patients with a higher impairment in quality of life reported lower levels of illness acceptance ( = 0.001) and a higher need for education and support ( = 0.004). AIS and PeDeSI were moderately correlated (rho = 0.33, < 0.001).
Arabic psoriatic patients showed moderate acceptance of illness and required some education to support dermatology self-care. Greater clinical attention with focus on patient education and counselling should be given to Arabic patients with psoriasis especially those with more impaired quality of life.
对疾病的接受程度极大地影响银屑病患者的生活质量。评估患者对教育和支持的需求对于患者咨询和随访非常重要。
评估阿拉伯银屑病患者对疾病的接受程度以及对支持皮肤病自我护理教育的需求。
采用问卷调查进行横断面研究。该调查收集了患者的人口统计学信息、疾病特征、疾病接受量表(AIS)和以患者为中心的皮肤病自我护理指数(PeDeSI)。结果指标以总体形式呈现,并按年龄、性别、病程、疾病严重程度、生活质量和教育水平进行分类。使用Spearman等级相关检验检查AIS与PeDeSI之间的相关性。
来自12个阿拉伯国家的209名银屑病患者参与了调查,平均年龄±标准差为35.8±10.0岁。AIS评分的中位数(四分位间距)为28(19 - 35)。PeDeSI评分的中位数(四分位间距)为15(11 - 22)。AIS和PeDeSI在年龄、性别、病程和教育水平方面均无差异。然而,生活质量受损程度较高的患者报告的疾病接受水平较低(P = 0.001),对教育和支持的需求较高(P = 0.004)。AIS和PeDeSI呈中度相关(rho = 0.33,P < 0.001)。
阿拉伯银屑病患者对疾病的接受程度中等,需要一些教育来支持皮肤病自我护理。对于阿拉伯银屑病患者,尤其是那些生活质量受损更严重的患者,应给予更多关注患者教育和咨询的临床关注。