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肿瘤遗忘权:意大利对癌症幸存者歧视的立法回应。

The Right to Oncological Oblivion: A Legislative Response to Cancer Survivor Discrimination in Italy.

作者信息

D'Antonio Gianpiero, Bolino Ginevra, Sorace Letizia, Volonnino Gianpietro, Pellegrini Lavinia, Di Fazio Nicola, Frati Paola

机构信息

Department of Anatomical, Histological, Forensic and Orthopedic Sciences, Sapienza University of Rome, 00128 Rome, Italy.

出版信息

Healthcare (Basel). 2024 Aug 21;12(16):1665. doi: 10.3390/healthcare12161665.

Abstract

Despite the increasing efficacy of modern medicine in diagnosing and treating cancer, survivors often face discrimination in employment, economics, insurance, and society. Law no. 193/2023, also known as the "Oncological Oblivion Law", aims to provide an initial legislative response to discrimination against cancer survivors in Italy. After defining oncological oblivion in Article 1, the Law provides, in Articles 2, 3, and 4, directives to prevent discrimination against cancer survivors in the area of access to banking and insurance services, adoption procedures and access to or retention in employment. The aim of this work is to illustrate the content and the critical aspects of the recent Law 193/2023 in the landscape of European directives. The legislative process at the Chamber of Deputies and the Senate of the Italian Republic has been retraced through the consultation of preparatory works and bills registered on institutional databases. Law 193/2023 represents the first initiative in Italy aimed at the recognition of the right to oncological oblivion, not only in access to banking and insurance services as in other countries, but also in adoption, employment, and re-employment. Our opinion piece highlights the need for further clarification and expansion to prevent discrimination and protect the social-work-relational rights of people who have been affected by oncological diseases.

摘要

尽管现代医学在癌症诊断和治疗方面的疗效不断提高,但癌症幸存者在就业、经济、保险和社会等方面常常面临歧视。第193/2023号法律,即“肿瘤遗忘法”,旨在为意大利针对癌症幸存者的歧视问题提供初步的立法回应。该法律在第1条对肿瘤遗忘进行定义后,在第2条、第3条和第4条中规定了防止在获取银行和保险服务、收养程序以及就业准入或留用等方面歧视癌症幸存者的指令。本文旨在阐述第193/2023号新法律在欧洲指令框架下的内容及关键要点。通过查阅在机构数据库中登记的筹备工作文件和法案,追溯了意大利众议院和参议院的立法过程。第193/2023号法律是意大利首个旨在承认肿瘤遗忘权的举措,不仅像其他国家那样涉及获取银行和保险服务方面,还涵盖收养、就业和再就业领域。我们的观点文章强调,需要进一步澄清和扩展相关内容,以防止歧视并保护受肿瘤疾病影响者的社会-工作-关系权利。

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