比较肾病学家自我报告的决策技能和治疗态度与患者在做出肾脏治疗决策及接受肾病护理方面的体验。
Comparing Nephrologists' Self-Reported Decision-Making Skills and Treatment Attitudes With Their Patients' Experiences of Making Kidney Therapy Decisions and Receiving Nephrology Care.
作者信息
Jawed Areeba, Batch Brook, Allen Rebecca, Epstein Ronald, Fiscella Kevin, Duberstein Paul, Saeed Fahad
机构信息
University of Michigan Michigan Medicine, Ann Arbor, MI, USA.
Mount Saint Joseph University, Cincinnati, OH, USA.
出版信息
Am J Hosp Palliat Care. 2025 Jun;42(6):587-593. doi: 10.1177/10499091241279939. Epub 2024 Aug 29.
BackgroundDialysis is often initiated in the United States without exploring patients' preferred decision-making style, and conservative kidney management (CKM) is infrequently presented. To improve kidney therapy (KT) decision-making, research on nephrologists' comfort with various decision-making styles, attitudes towards CKM, and reports of patients' lived experiences with KT decision-making is needed.MethodsWe surveyed 28 nephrologists and 58 of their patients aged ≥75 years. The nephrologist survey was designed to gauge their comfort levels with decision-making styles and attitudes towards CKM. The patient survey assessed experiences in making KT decisions.ResultsThe average age of nephrologists was 43 years, and that of patients was 82 years. Nephrologists rated themselves as comfortable with various decision styles: paternalistic (60.7%), shared decision-making (92.8%), and patient-driven decision-making (67.8%). Nearly 57% of nephrologists felt challenged or were neutral in determining CKM's suitability, and 39% reported difficulties in discussing CKM with patients or were neutral. Only 38 % of patients recalled discussing CKM with their nephrologists, and a minority reported discussing CKM-related topics such as life expectancy (24.7%), quality of life (QOL) (45.1%), and end-of-life care (17.5%).ConclusionsMost nephrologists displayed comfort with various decision-making styles; however, many described difficulties in guiding patients toward CKM. In contrast, patients reported gaps in vital aspects of KT decision-making and CKM choices, such as discussions of life expectancy, QOL, and end-of-life care. Raising awareness of blind spots in decision-making skills and educating nephrologists in KT decision-making to include CKM and other person-centered aspects of care are needed.
背景
在美国,透析治疗往往在未探究患者偏好的决策方式的情况下就开始了,而保守肾脏管理(CKM)很少被提及。为了改善肾脏治疗(KT)决策,需要研究肾科医生对各种决策方式的接受程度、对CKM的态度以及患者KT决策的生活经历报告。
方法
我们调查了28名肾科医生及其58名年龄≥75岁的患者。肾科医生调查问卷旨在评估他们对决策方式的接受程度以及对CKM的态度。患者调查问卷评估了KT决策的经历。
结果
肾科医生的平均年龄为43岁,患者的平均年龄为82岁。肾科医生认为自己对各种决策方式都感到自在:家长式决策(60.7%)、共同决策(92.8%)和患者主导决策(67.8%)。近57%的肾科医生在确定CKM的适用性方面感到受到挑战或持中立态度,39%的肾科医生报告在与患者讨论CKM时有困难或持中立态度。只有38%的患者回忆起与肾科医生讨论过CKM,少数患者报告讨论过与CKM相关的话题,如预期寿命(24.7%)、生活质量(QOL)(45.1%)和临终关怀(17.5%)。
结论
大多数肾科医生对各种决策方式都感到自在;然而,许多人描述在引导患者接受CKM方面存在困难。相比之下,患者报告在KT决策和CKM选择的关键方面存在差距,如预期寿命、生活质量和临终关怀的讨论。需要提高对决策技能盲点的认识,并对肾科医生进行KT决策教育,使其包括CKM和其他以患者为中心的护理方面。