Arega Gashaw, Said Abdulkadir M, Workineh Sosina, Hussien Kedir, Ketema Kassahun
Addis Ababa University, Addis Ababa, Ethiopia.
Madda Walabu University, Bale Robe, Oromia, Ethiopia.
Glob Pediatr Health. 2024 Aug 28;11:2333794X241275258. doi: 10.1177/2333794X241275258. eCollection 2024.
. Many caregivers who care for their children with cancer are affected by the care burden due to the chronic nature of the disease. This study aimed to determine the burden of care level and its related factors in the caregivers of children with cancer. . A facility-based, cross-sectional study was conducted at Tikur Anbessa Specialized Hospital. Children diagnosed with cancer and treated at the hospital between July 1 and August 1, 2023, and their caregivers were included. The data were analyzed using SPSS version 25. Descriptive analysis and inferential statistics were used to summarize the data and to determine the association with the dependent variable. Statistical significance was set at < .05. . A total of 208 children with cancer and their caregivers were included in the study. Most children (81, 38.9%) were below 5 years of age, and 80.3% (n = 167) of the patients came from out of Addis Ababa. The most common type of childhood cancer was haemato-lymphoid cancer (n = 117, 56.3%). The mean duration of cancer care after diagnosis was 289.55 days. The median age of caregivers was 35 ± 8.7 years, most of the caregivers were parents of the child (n = 185, 88.9%), married (n = 186, 87%), had a primary level education (n = 66, 31.7), and 87.5% (n = 182) had insufficient income for the cancer treatment cost. The average caring time was 19 to 24 hours for 76.4% (n = 159) of caregivers, and more than one-fourth of caregivers (n = 57, 27.4%) intended to abandon treatment if they couldn't get support to continue the care. The mean care burden in caregivers was 65.76 ± 14 and about, 53.4% (n = 111) and 35.1% (n = 73) of caregivers had moderate and severe care burden. Binary logistic analysis showed the factors associated with an increased care burden were the caregiver's occupational status ( = .034, 95 % CI; AOR (0.064, 0.890)), lack of support from NGOs ( = .037, 95 % CI; AOR (1.053, 5.254), and insufficient monthly income for the treatment ( = .034; 95% CI; AOR (0.064, 0.896)). . Most of the caregivers of children with cancer were parents and had insufficient income for the treatment. More than one-fourth had an intention to abandon the cancer treatment. Most caregivers had moderate to severe care burdens.
许多照顾患癌子女的照料者因疾病的慢性性质而受到照料负担的影响。本研究旨在确定癌症患儿照料者的照料负担水平及其相关因素。在提库尔·安贝萨专科医院开展了一项基于机构的横断面研究。纳入了2023年7月1日至8月1日期间在该医院诊断并接受治疗的癌症患儿及其照料者。使用SPSS 25版对数据进行分析。描述性分析和推断性统计用于汇总数据并确定与因变量的关联。设定统计学显著性为<0.05。共有208名癌症患儿及其照料者纳入研究。大多数患儿（81名，38.9%）年龄在5岁以下，80.3%（n = 167）的患者来自亚的斯亚贝巴以外地区。儿童癌症最常见的类型是血液淋巴系统癌症（n = 117，56.3%）。诊断后癌症护理的平均时长为289.55天。照料者的中位年龄为35±8.7岁，大多数照料者是患儿的父母（n = 185，88.9%），已婚（n = 186，87%），接受过小学教育（n = 66，31.7%），87.5%（n = 182）的人没有足够收入支付癌症治疗费用。76.4%（n = 159）的照料者平均照料时间为19至24小时，超过四分之一的照料者（n = 57，27.4%）表示如果无法获得继续照料的支持，他们打算放弃治疗。照料者的平均照料负担为65.76±14，约53.4%（n = 111）和35.1%（n = 73）的照料者有中度和重度照料负担。二元逻辑分析显示与照料负担增加相关的因素是照料者的职业状况（P = 0.034，95%置信区间；优势比（0.064，0.890））、缺乏非政府组织的支持（P = 0.037，95%置信区间；优势比（1.053，5.254））以及每月治疗收入不足（P = 0.034；95%置信区间；优势比（0.064，0.896））。大多数癌症患儿的照料者是父母，且没有足够收入支付治疗费用。超过四分之一的人打算放弃癌症治疗。大多数照料者有中度至重度照料负担。
