Student Research Committee, Kermanshah University of Medical Sciences, Kermanshah, Iran.
Social Development and Health Promotion Research Center, Health Institute, Kermanshah University of Medical Sciences, Kermanshah, Iran.
Ital J Pediatr. 2022 Jun 13;48(1):92. doi: 10.1186/s13052-022-01291-w.
Evidence suggests that many parents who care for their children with cancer are affected by the care burden due to the chronic nature of the disease. The aim of this study was to determine the burden of care level and its related factors in the caregivers of children with cancer.
A total of 270 caregivers of children with cancer were included in this cross-sectional study by convenience sampling method. Data collection tools were a personal information form and the Novak & Guest's Caregiver Burden Inventory. Data were analyzed by descriptive and inferential statistics (chi-square and univariate linear regression model).
The mean ages of caregivers and patients were 35.7 ± 7.0 and 3.1 ± 1.6 years, respectively. The mean care burden was 68.4 ± 1.5 out of 120. About 50 and 36% of caregivers had moderate and severe care burden, respectively.
Caregivers had moderate to high care burden. A number of factors associated with care burden were identified. Health authorities need to take family-centered measures to reduce the burden of caregivers.
有证据表明，许多照顾癌症患儿的家长因疾病的慢性性质而受到照顾负担的影响。本研究旨在确定癌症患儿照顾者的照顾负担水平及其相关因素。
本横断面研究采用便利抽样法纳入 270 名癌症患儿的照顾者。数据收集工具包括个人信息表和 Novak & Guest 照顾者负担量表。采用描述性和推断性统计分析（卡方检验和单因素线性回归模型）对数据进行分析。
照顾者和患儿的平均年龄分别为 35.7±7.0 岁和 3.1±1.6 岁。照顾负担的平均得分为 120 分中的 68.4±1.5 分。约 50%和 36%的照顾者分别有中度和重度照顾负担。
照顾者的照顾负担处于中等到高度水平。确定了一些与照顾负担相关的因素。卫生当局需要采取以家庭为中心的措施来减轻照顾者的负担。
