Alpert Jordan M, Amin Tithi B, Zhongyue Zhang, Markham Merry Jennifer, Murphy Martina, Bylund Carma L
Center for Value-Based Care Research, Cleveland Clinic, 9500 Euclid Ave, Mail Code: G-10, Cleveland, OH, 44195, USA.
Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, Gainesville, FL, USA.
J Cancer Educ. 2025 Apr;40(2):182-191. doi: 10.1007/s13187-024-02491-0. Epub 2024 Sep 2.
Secure messaging (SM) is an important aspect of communication for patients with cancer. SM fosters patient-clinician communication and helps patients with symptom management and treatment support. However, patients are uncertain about how to phrase messages appropriately and have expressed the need for guidance. In response, we designed a user-centered, web-based application named SEND The application focuses on specificity, expression, needs, and directness through interactive video tutorials and quizzes. Our objective was to comprehensively evaluate SEND based on its levels of engagement, satisfaction, acceptability, and appropriateness. We recruited 101 patients with various cancer diagnoses to use SEND and then fill out a survey 1 to 2 weeks later about their experience. Patients' mean age was 64 years; most were male (55%), white (83%), diagnosed with cancer in 2020 with high levels of self-efficacy, and 51% had a bachelor's degree or higher. 65% were engaged in the application, and respondents spent an average of 15 min interacting with SEND Satisfaction was 90.4%, 85.4% found it acceptable, and 88.6% appropriate. There were no statistically significant differences across age, sex, race, education, or year of diagnosis. Results underscore the potential of eHealth interventions, like SEND, in enhancing patient-clinician communication in cancer care. By empowering patients with effective message-writing techniques, SEND has the potential to improve the quality of SM, which can lead to faster response times and more patient-centered responses.
安全消息传递(SM)是癌症患者沟通的一个重要方面。安全消息传递促进了患者与临床医生之间的沟通,并有助于患者进行症状管理和获得治疗支持。然而,患者不确定如何恰当地措辞信息,并表示需要指导。作为回应,我们设计了一个以用户为中心的基于网络的应用程序,名为SEND。该应用程序通过交互式视频教程和测验,专注于信息的具体性、表达、需求和直接性。我们的目标是根据SEND的参与度、满意度、可接受性和适当性水平对其进行全面评估。我们招募了101名患有各种癌症诊断的患者使用SEND,然后在1至2周后填写一份关于他们体验的调查问卷。患者的平均年龄为64岁;大多数为男性(55%),白人(83%),于2020年被诊断出患有癌症,自我效能水平较高,51%拥有学士学位或更高学历。65%的患者参与了该应用程序,受访者与SEND互动的平均时间为15分钟。满意度为90.4%,85.4%的人认为它可以接受,88.6%的人认为它合适。在年龄、性别、种族、教育程度或诊断年份方面没有统计学上的显著差异。结果强调了像SEND这样的电子健康干预措施在加强癌症护理中患者与临床医生沟通方面的潜力。通过赋予患者有效的信息撰写技巧,SEND有可能提高安全消息传递的质量,这可以带来更快的响应时间和更以患者为中心的回复。