Department of Science, Technology, and Policy Studies, Faculty of Behavioural, Management, and Social Sciences, University of Twente, Enschede, The Netherlands.
Faculty of Humanities, Open University, Heerlen, The Netherlands.
Health Res Policy Syst. 2024 Sep 2;22(1):119. doi: 10.1186/s12961-024-01152-4.
Citizen science can be a powerful approach to foster the successful implementation of technological innovations in health, care or well-being. Involving experience experts as co-researchers or co-designers of technological innovations facilitates mutual learning, community building, and empowerment. By utilizing the expert knowledge of the intended users, innovations have a better chance to get adopted and solve complex health-related problems. As citizen science is still a relatively new practice for health and well-being, little is known about effective methods and guidelines for successful collaboration. This scoping review aims to provide insight in (1) the levels of citizen involvement in current research on technological innovations for health, care or well-being, (2) the used participatory methodologies, and (3) lesson's learned by the researchers.A scoping review was conducted and reported in accordance with the PRISMA-ScR guidelines. The search was performed in SCOPUS in January 2021 and included peer-reviewed journal and conference papers published between 2016 and 2020. The final selection (N = 83) was limited to empirical studies that had a clear focus on technological innovations for health, care or well-being and involved citizens at the level of collaboration or higher. Our results show a growing interest in citizens science as an inclusive research approach. Citizens are predominantly involved in the design phase of innovations and less in the preparation, data-analyses or reporting phase. Eight records had citizens in the lead in one of the research phases.Researcher use different terms to describe their methodological approach including participatory design, co-design, community based participatory research, co-creation, public and patient involvement, partcipatory action research, user-centred design and citizen science. Our selection of cases shows that succesful citizen science projects develop a structural and longitudinal partnership with their collaborators, use a situated and adaptive research approach, and have researchers that are willing to abandon traditional power dynamics and engage in a mutual learning experience.
公民科学可以成为一种强大的方法，以促进医疗保健或福祉领域的技术创新的成功实施。让经验丰富的专家作为技术创新的共同研究人员或共同设计者，可以促进相互学习、社区建设和赋权。通过利用预期用户的专业知识，创新更有可能被采用并解决复杂的与健康相关的问题。由于公民科学对于健康和福祉来说仍然是一种相对较新的实践，因此对于成功合作的有效方法和指导方针知之甚少。本范围综述旨在提供以下方面的见解：（1）当前针对医疗保健或福祉领域的技术创新的研究中公民参与的程度；（2）使用的参与性方法；（3）研究人员的经验教训。
根据 PRISMA-ScR 指南进行了范围综述，并进行了报告。搜索于 2021 年 1 月在 SCOPUS 中进行，包括 2016 年至 2020 年期间发表的同行评审期刊和会议论文。最终选择（N=83）仅限于明确关注医疗保健或福祉领域的技术创新且涉及协作或更高层次公民的实证研究。我们的结果表明，公民科学作为一种包容性的研究方法越来越受到关注。公民主要参与创新的设计阶段，而在准备、数据分析或报告阶段的参与较少。有 8 个记录显示公民在一个研究阶段处于领先地位。
研究人员使用不同的术语来描述他们的方法学方法，包括参与式设计、共同设计、基于社区的参与式研究、共同创造、公众和患者参与、参与式行动研究、以用户为中心的设计和公民科学。我们的案例选择表明，成功的公民科学项目与其合作者建立了结构性和纵向的伙伴关系，使用了情境化和适应性的研究方法，并且研究人员愿意放弃传统的权力动态，参与相互学习的体验。
