Pross Therese, Karsten Maria Margarete, Blohmer Jens-Uwe
Department of Gynecology with Breast Center, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
Geburtshilfe Frauenheilkd. 2024 Sep 2;84(9):845-854. doi: 10.1055/a-2369-1489. eCollection 2024 Sep.
Standardized treatment pathways should make it easier for medical staff and patients to achieve the best possible individual treatment outcome by making sure all relevant information are taken into consideration. The aim of this paper is to identify gaps in care along the treatment pathway through semi-structured patient interviews. Subsequently, it will be discussed if mobile health applications can close these identified gaps in care.
Nine semi-structured interviews of patients with invasive lobular breast cancer were conducted in March 2023 in German at the breast cancer center at Charité Universitätsmedizin Berlin, which were subsequently transcribed word for word and processed using a thematic analysis approach.
Eight recurring themes are identified in the patient interviews: 1. Limited capacity to absorb information, 2. Discrepancy between information needs and information provision, 3. Need for individual initiative, 4. Uncertainty, 5. not being seen and heard, 6. Patient's desires and suggestions for improvement, 7. Use of mobile health apps, 8. Support through an app for patients.
The identified gaps in care of breast cancer patients can be largely addressed through the use of digital health solutions after the establishment of regulatory frameworks, thus improving care for patients with early breast cancer.
The interviews were done within a registry for which ethical approval was obtained by the Ethics Committee of Charité Universitätsmedizin Berlin EA4/180/17.
标准化治疗路径应通过确保考虑所有相关信息，使医护人员和患者更易于实现最佳的个体化治疗结果。本文旨在通过半结构化患者访谈识别治疗路径中的护理差距。随后，将讨论移动健康应用程序是否可以弥补这些已识别的护理差距。
2023年3月，在柏林夏里特大学医学中心的乳腺癌中心，用德语对9名浸润性小叶乳腺癌患者进行了半结构化访谈，随后逐字转录并采用主题分析方法进行处理。
在患者访谈中确定了八个反复出现的主题：1. 信息吸收能力有限；2. 信息需求与信息提供之间的差异；3. 需要个人主动性；4. 不确定性；5. 未被关注和倾听；6. 患者的愿望和改进建议；7. 移动健康应用程序的使用；8. 通过应用程序为患者提供支持。
在建立监管框架后，通过使用数字健康解决方案，可在很大程度上解决已识别的乳腺癌患者护理差距，从而改善早期乳腺癌患者的护理。
访谈是在一个注册研究中进行的，该研究已获得柏林夏里特大学医学中心伦理委员会EA4/180/17的伦理批准。
