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自闭症谱系障碍儿童家长远程教育项目的效果:综合评价。

Effectiveness of Distance Educational Programs for parents of children diagnosed with Autism Spectrum Disorder: an integrative review.

机构信息

Departamento de Fonoaudiologia, Escola Paulista de Medicina, Universidade de São Paulo - UNIFESP - São Paulo (SP), Brasil.

Programa de Pós-graduação Distúrbios da Comunicação Humana, Universidade de São Paulo - UNIFESP - São Paulo (SP), Brasil.

出版信息

Codas. 2024 Sep 2;36(5):e20230291. doi: 10.1590/2317-1782/20242023291pt. eCollection 2024.

DOI:10.1590/2317-1782/20242023291pt
PMID:39230180
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11404835/
Abstract

OBJECTIVE

to analyze the scientific literature on distance education programs for parents/caregivers in the development of children with Autism Spectrum Disorder (ASD).

RESEARCH METHOD

the PICO strategy was used to identify the research problem. The databases Medline, ERIC, LILACs, EMBASE, CINAHL, Web of Science, and Scopus were searched using specific descriptors and free terms. There were no restrictions on time or language. Articles on online educational programs for parents of children with ASD were selected, focusing on the impact of these programs on the development of children up to six years old.

SELECTION CRITERIA

studies were selected based on standard eligibility criteria, including full-text reading after initial screening using the RAYYAN software. Primary studies such as clinical trials and systematic reviews evaluating distance education programs for parents of children with ASD were included.

DATA ANALYSIS

the RAYYAN software was used for initial study selection. Articles were hierarchically organized based on title and abstract, followed by full-text reading to apply eligibility criteria.

RESULTS

the initial search yielded 1019 articles, of which 192 were identified as duplicates. After initial screening and full-text reading, 37 articles were analyzed, of which six were deemed eligible to answer the research question. Among the eligible studies, one was a systematic review and five were experimental studies. Experimental studies highlighted positive impacts on areas such as daily routines, behavioral flexibility, and communication. The systematic review provided preliminary evidence that distance education programs for parents can enhance knowledge about ASD, increase adherence to interventions, and foster the development of social and communication skills in children.

CONCLUSION

the findings suggest that remote parent guidance programs may effectively improve knowledge about ASD, increase parent adherence to interventions, and promote the development of social and communication skills in children with ASD.

摘要

目的

分析针对自闭症谱系障碍(ASD)儿童家长/照顾者的远程教育计划的科学文献。

研究方法

采用 PICO 策略来确定研究问题。使用特定的描述符和自由词在 Medline、ERIC、LILACs、EMBASE、CINAHL、Web of Science 和 Scopus 数据库中进行检索。没有时间或语言限制。选择了针对 ASD 儿童家长的在线教育计划的文章,重点关注这些计划对 6 岁以下儿童发展的影响。

选择标准

根据标准的纳入标准选择研究,包括使用 RAYYAN 软件对初始筛选后的全文进行阅读。纳入了评估 ASD 儿童家长远程教育计划的临床试验和系统评价等原始研究。

数据分析

使用 RAYYAN 软件进行初步研究选择。文章根据标题和摘要进行分层组织,然后进行全文阅读以应用纳入标准。

结果

初步搜索产生了 1019 篇文章,其中 192 篇被认为是重复的。经过初步筛选和全文阅读,分析了 37 篇文章,其中 6 篇符合回答研究问题的标准。在合格的研究中,有一项是系统评价,有五项是实验研究。实验研究强调了对日常生活、行为灵活性和沟通等领域的积极影响。系统评价提供了初步证据表明,家长远程教育计划可以提高对 ASD 的认识,增加对干预措施的依从性,并促进 ASD 儿童社交和沟通技能的发展。

结论

研究结果表明,远程家长指导计划可能有效地提高对 ASD 的认识,增加家长对干预措施的依从性,并促进 ASD 儿童社交和沟通技能的发展。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b1a/11404835/7181904aa364/codas-36-5-e20230291-g01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b1a/11404835/085426db8925/codas-36-5-e20230291-g01-en.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b1a/11404835/7181904aa364/codas-36-5-e20230291-g01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b1a/11404835/085426db8925/codas-36-5-e20230291-g01-en.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b1a/11404835/7181904aa364/codas-36-5-e20230291-g01.jpg

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本文引用的文献

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Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020.2020 年,美国 11 个监测点自闭症和发育障碍监测网络 8 岁儿童自闭症谱系障碍的流行率和特征。
MMWR Surveill Summ. 2023 Mar 24;72(2):1-14. doi: 10.15585/mmwr.ss7202a1.
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[Incorporation of telehealth in primary healthcare and associated factors in Brazil].[巴西初级医疗保健中远程医疗的纳入情况及相关因素]
Cad Saude Publica. 2022 May 9;38(4):PT252221. doi: 10.1590/0102-311XPT252221. eCollection 2022.
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Coaching via Telehealth: Caregiver-Mediated Interventions for Young Children on the Waitlist for an Autism Diagnosis Using Single-Case Design.
通过远程医疗进行指导:针对等待自闭症诊断的幼儿,采用单病例设计的照顾者介导干预措施。
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End-user perspectives on the development of an online intervention for parents of children on the autism spectrum.家长视角下孤独症谱系儿童在线干预措施的制定。
Autism. 2021 Jul;25(5):1234-1245. doi: 10.1177/1362361320984895. Epub 2021 Jan 11.
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Multidisciplinary Teaming: Enhancing Collaboration through Increased Understanding.多学科协作:通过增进理解加强合作。
Behav Anal Pract. 2019 Mar 26;12(3):709-726. doi: 10.1007/s40617-019-00331-y. eCollection 2019 Sep.
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Autism Res. 2018 Apr;11(4):667-678. doi: 10.1002/aur.1919. Epub 2018 Jan 7.
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Parent-Mediated Intervention Training Delivered Remotely for Children With Autism Spectrum Disorder Living Outside of Urban Areas: Systematic Review.为居住在城市以外地区的自闭症谱系障碍儿童提供的远程家长介导干预培训:系统评价
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