Karaca Berkay Öner, Tellioğlu Adem
J Pediatr Ophthalmol Strabismus. 2025 Jan-Feb;62(1):33-38. doi: 10.3928/01913913-20240807-03. Epub 2024 Sep 10.
To evaluate the quality, reliability, and popularity of YouTube videos addressing retinoblastoma.
This was a retrospective, cross-sectional, register-based study. A YouTube search was performed using the keyword retinoblastoma and the first 100 videos that came out were included in the study. Duplicate videos, videos that were not in English, and videos that were less than 1 minute were excluded. The number of views, likes, dislikes, comments, video type (uploaded by physicians, uploaded by public or private institution, uploaded by health channel or uploaded by patients), and country of origin were evaluated for all videos. The popularity of the videos was evaluated with the Video Power Index. The quality of the videos was measured using the DISCERN score (DISCERN), (JAMA) benchmark criteria, and Global Quality Score (GQS).
Of the 100 videos, 70 videos met the criteria and were included in the study. The mean DISCERN, JAMA, and GQS scores were 42.54 ± 18.77, 2.14 ± 1.03, 2.87 ± 1.42 and 2.99 ± 1.44, respectively. On examining the upload source 18 (25.7%) videos were uploaded by private institutions, 15 (21.4%) videos by physicians, 14 (20.0%) videos by public institutions, 14 (20.0%) videos by health channels, and 9 (12.9%) videos by patients. There was a significant level of agreement between the two commentators evaluating the videos with a power of 91.6% (kappa score: 0.916). Videos uploaded by physicians and public or private institutions had significantly higher DISCERN, JAMA, and GQS scores.
The content of YouTube videos regarding retinoblastoma is generally of moderate quality for patients. Increasing the number of videos uploaded by physicians and public or private institutions will increase the quality, reliability, and informative value of the videos. .
评估YouTube上关于视网膜母细胞瘤视频的质量、可靠性和受欢迎程度。
这是一项基于注册的回顾性横断面研究。使用关键词“视网膜母细胞瘤”在YouTube上进行搜索，研究纳入出现的前100个视频。排除重复视频、非英语视频以及时长少于1分钟的视频。对所有视频评估观看次数、点赞数、点踩数、评论数、视频类型（由医生上传、由公共或私立机构上传、由健康频道上传或由患者上传）以及原产国。通过视频影响力指数评估视频的受欢迎程度。使用DISCERN评分（DISCERN）、（《美国医学会杂志》）基准标准和全球质量评分（GQS）衡量视频质量。
100个视频中，70个视频符合标准并纳入研究。DISCERN、《美国医学会杂志》和GQS评分的平均值分别为42.54±18.77、2.14±1.03、2.87±1.42和2.99±1.44。检查上传来源时，18个（25.7%）视频由私立机构上传，15个（21.4%）视频由医生上传，14个（20.0%）视频由公共机构上传，14个（20.0%）视频由健康频道上传，9个（12.9%）视频由患者上传。两位评估视频的评论者之间存在显著的一致性水平，一致性强度为91.6%（kappa评分：0.916）。由医生以及公共或私立机构上传的视频具有显著更高的DISCERN、《美国医学会杂志》和GQS评分。
YouTube上关于视网膜母细胞瘤的视频内容对患者而言总体质量中等。增加医生以及公共或私立机构上传的视频数量将提高视频的质量、可靠性和信息价值。
