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父母对其子女被诊断患有自闭症、注意力缺陷多动障碍或两种疾病的经历。

Parent experiences of their children's diagnosis with autism, attention deficit hyperactivity disorder, or both conditions.

作者信息

Sainsbury Willow J, Bowden Chris J, Carrasco Kelly D, Whitehouse Andrew J O, Waddington Hannah

机构信息

Faculty of Education, Victoria University of Wellington, Wellington, New Zealand.

Telethon Kids Institute, Perth, Australia.

出版信息

Int J Dev Disabil. 2023 Jan 17;70(7):1173-1183. doi: 10.1080/20473869.2023.2166197. eCollection 2024.

Abstract

A comparison of parents' experiences of getting a diagnosis for their child with autism, attention deficit hyperactivity disorder (ADHD) and both diagnoses can inform our understanding of common and unique themes across these neurodevelopmental conditions. A quantitative and qualitative online anonymous survey of 288 New Zealand parents of children diagnosed with autism ( = 111), ADHD ( = 93), or both conditions ( = 84) was conducted. Open-ended questions were analysed using reflexive thematic analysis. Parents described an adversarial diagnosis and support system where seemingly arbitrary criteria and thresholds were applied. Key themes specific to the different diagnostic groups were also identified. Common themes of parents' experience across the different neurodevelopmental conditions highlight the need for changes to the diagnostic process.

摘要

比较父母为患有自闭症、注意力缺陷多动障碍(ADHD)以及同时患有这两种疾病的孩子进行诊断的经历,有助于我们理解这些神经发育障碍中常见和独特的主题。对288名新西兰儿童家长进行了一项定量和定性的在线匿名调查,这些儿童被诊断患有自闭症(n = 111)、ADHD(n = 93)或同时患有这两种疾病(n = 84)。使用反思性主题分析法对开放式问题进行了分析。家长们描述了一个充满对抗性的诊断和支持系统,其中应用了看似随意的标准和阈值。还确定了不同诊断组特有的关键主题。不同神经发育障碍中家长经历的共同主题凸显了诊断过程需要改进。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8348/11660395/0469ccd15dc3/YJDD_A_2166197_F0001_B.jpg

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