McCarthy F T, Kenis A, Parravicini E
Department of Pediatrics, Division of Neonatology, Columbia University Irving Medical Center, New York, NY, United States.
Front Pediatr. 2023 Sep 26;11:1258285. doi: 10.3389/fped.2023.1258285. eCollection 2023.
Providing comfort while a patient is living with a life-limiting condition or at end of life is the hallmark of palliative care regardless of the patient's age. In perinatal palliative care, the patient is unable to speak for themselves. In this manuscript we will present guidelines garnered from the 15-year experience of the Neonatal Comfort Care Program at Columbia University Irving Medical Center, and how they provide care for families along the perinatal journey. We will describe essential tools and strategies necessary to consider in assessing and providing comfort to infants facing a life-limiting diagnosis , born at the cusp of viability or critically ill where the burden of care may outweigh the benefit.
无论患者年龄多大，在患者患有危及生命的疾病或生命末期时提供舒适护理是姑息治疗的标志。在围产期姑息治疗中，患者无法为自己发声。在本手稿中，我们将介绍从哥伦比亚大学欧文医学中心新生儿舒适护理项目15年经验中获得的指南，以及这些指南如何在围产期为家庭提供护理。我们将描述在评估和为面临危及生命诊断的婴儿提供舒适护理时需要考虑的基本工具和策略，这些婴儿出生时处于可存活边缘或患有重症，此时护理负担可能超过益处。
