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围产期姑息治疗:关注舒适护理。

Perinatal palliative care: focus on comfort.

作者信息

McCarthy F T, Kenis A, Parravicini E

机构信息

Department of Pediatrics, Division of Neonatology, Columbia University Irving Medical Center, New York, NY, United States.

出版信息

Front Pediatr. 2023 Sep 26;11:1258285. doi: 10.3389/fped.2023.1258285. eCollection 2023.

Abstract

Providing comfort while a patient is living with a life-limiting condition or at end of life is the hallmark of palliative care regardless of the patient's age. In perinatal palliative care, the patient is unable to speak for themselves. In this manuscript we will present guidelines garnered from the 15-year experience of the Neonatal Comfort Care Program at Columbia University Irving Medical Center, and how they provide care for families along the perinatal journey. We will describe essential tools and strategies necessary to consider in assessing and providing comfort to infants facing a life-limiting diagnosis , born at the cusp of viability or critically ill where the burden of care may outweigh the benefit.

摘要

无论患者年龄多大,在患者患有危及生命的疾病或生命末期时提供舒适护理是姑息治疗的标志。在围产期姑息治疗中,患者无法为自己发声。在本手稿中,我们将介绍从哥伦比亚大学欧文医学中心新生儿舒适护理项目15年经验中获得的指南,以及这些指南如何在围产期为家庭提供护理。我们将描述在评估和为面临危及生命诊断的婴儿提供舒适护理时需要考虑的基本工具和策略,这些婴儿出生时处于可存活边缘或患有重症,此时护理负担可能超过益处。

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本文引用的文献

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Neonatal pain assessment: Do we have the right tools?新生儿疼痛评估:我们有合适的工具吗?
Front Pediatr. 2023 Feb 2;10:1022751. doi: 10.3389/fped.2022.1022751. eCollection 2022.
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An ethical rationale for perinatal palliative care.围产期姑息治疗的伦理基础。
Semin Perinatol. 2022 Apr;46(3):151526. doi: 10.1016/j.semperi.2021.151526. Epub 2021 Nov 9.
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The Neonatal Comfort Care Program: Origin and Growth Over 10 Years.新生儿舒适护理项目:十年的起源与发展
Front Pediatr. 2020 Oct 30;8:588432. doi: 10.3389/fped.2020.588432. eCollection 2020.
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Neonatal End-of-Life Symptom Management.新生儿临终症状管理
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