Nurse, Pediatric Intensive Care Unit, Regional University Hospital of Málaga, Universidad de Málaga.
Pediatrician, Complex Chronic and Palliative Pediatric Care Unit, Regional University Hospital of Málaga. Universidad de Málaga.
Int J Palliat Nurs. 2024 Aug 2;30(8):424-431. doi: 10.12968/ijpn.2024.30.8.424.
Telemedicine is a means of providing efficient treatment for children with complex chronic conditions and/or subsidiary palliative paediatric care.
To evaluate how satisfied families and healthcare professionals are with a telemedicine programme.
This is a qualitative study of narrative design. Ten interviews were conducted with family members and professionals who had been using telemedicine for a year. Sampling was intentional and a discourse and content analysis was conducted.
Six thematic categories emerged from the analysis of the interviews: degree of satisfaction; usefulness; benefits according to patient needs and attention; technical and human difficulties; and implantation of the system and proposals for improvement.
The study shows that telemedicine is a very useful complementary tool for healthcare professionals in a palliative care context. It is necessary to take into account the perception and needs of both families and healthcare professionals with regard to this tool since it can improve patient care.
远程医疗是为患有复杂慢性疾病和/或辅助姑息治疗的儿童提供有效治疗的一种手段。
评估家庭和医疗保健专业人员对远程医疗计划的满意度。
这是一项基于叙事设计的定性研究。对使用远程医疗一年的家庭成员和专业人员进行了 10 次访谈。抽样是有目的的，进行了话语和内容分析。
从访谈分析中得出了六个主题类别：满意度；有用性；根据患者需求和关注的好处；技术和人员困难；系统的植入和改进建议。
研究表明，远程医疗是姑息治疗背景下医疗保健专业人员非常有用的补充工具。必须考虑到家庭和医疗保健专业人员对这一工具的看法和需求，因为它可以改善患者的护理。
