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本文引用的文献

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Qual Life Res. 2024 Apr;33(4):1051-1061. doi: 10.1007/s11136-023-03585-w. Epub 2024 Jan 31.
2
Preference Elicitation Techniques Used in Valuing Children's Health-Related Quality-of-Life: A Systematic Review.偏好 elicitation 技术在评估儿童健康相关生活质量中的应用:系统综述。
Pharmacoeconomics. 2022 Jul;40(7):663-698. doi: 10.1007/s40273-022-01149-3. Epub 2022 May 27.
3
Systematic Review of Conceptual, Age, Measurement and Valuation Considerations for Generic Multidimensional Childhood Patient-Reported Outcome Measures.系统评价:通用多维儿童患者报告结局测量的概念、年龄、测量和评估考虑因素。
Pharmacoeconomics. 2022 Apr;40(4):379-431. doi: 10.1007/s40273-021-01128-0. Epub 2022 Jan 24.
4
Challenges in developing capability measures for children and young people for use in the economic evaluation of health and care interventions.发展儿童和青少年能力测量工具在卫生和保健干预经济评价中的挑战。
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J Patient Rep Outcomes. 2021 Mar 10;5(1):26. doi: 10.1186/s41687-021-00302-4.
6
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8
A Systematic Review of the Use and Quality of Qualitative Methods in Concept Elicitation for Measures with Children and Young People.系统评价定性方法在儿童和青少年测量概念提取中的使用和质量。
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9
Review of Valuation Methods of Preference-Based Measures of Health for Economic Evaluation in Child and Adolescent Populations: Where are We Now and Where are We Going?基于偏好的儿童和青少年健康衡量指标的经济评价估值方法综述:我们现在在哪里,我们要去哪里?
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Capability instruments in economic evaluations of health-related interventions: a comparative review of the literature.健康相关干预措施经济评价中的能力量表:文献的比较综述。
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儿童和青少年(11-15 岁)经济评估中能力福利衡量标准的制定。

The development of a capability wellbeing measure in economic evaluation for children and young people aged 11-15.

机构信息

Health Economics & Health Policy (HEHP@Bristol), Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, BS8 1NU, UK.

Health Economics Unit, Institute of Applied Health Research, University of Birmingham, Birmingham, B15 2TT, UK.

出版信息

Soc Sci Med. 2024 Nov;360:117311. doi: 10.1016/j.socscimed.2024.117311. Epub 2024 Sep 8.

DOI:10.1016/j.socscimed.2024.117311
PMID:39276395
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7616779/
Abstract

The capability approach provides a broad evaluative space for making funding decisions for health and care interventions, with capability wellbeing as the outcome of value. A range of capability measures have been developed for the economic evaluation of health and care interventions for adults. However, such measures have not been previously developed for children and young people for this purpose and may be valuable. This study aimed to identify important capabilities for children and young people aged 11-15, and to develop these into attributes for an economic measure that can inform funding decisions. Thirty-three qualitative in-depth interviews were undertaken with children and young people aged 11-15 (n = 19) and parents (n = 14) in urban and rural areas of England between September 2019 and November 2021. Purposeful maximum variation sampling ensured representation from different backgrounds. Children and young people were asked to think of things important to them and place these on sticky notes around a drawing/photograph of themselves; the interview asked them about these important things. Parents were asked to identify factors that enhanced and negatively impacted their child's quality of life. Analysis using constant comparison facilitated exploration of similarities and differences in important capabilities. A second phase of semi-structured interviews with children and young people (n = 15) explored how these attributes should be expressed in a meaningful way. Eight overarching capability wellbeing themes were identified, with some variation across children and young people, and parent groups: Fun and enjoyment; Learning and experiencing; Attachment; Emotional security andsupport; Achievement; Identity and choice; Physical safety; Aspiration. Potentially, this information will help to provide an alternative approach to the measurement of benefits to children and young people for economic evaluation of health and care interventions, one that will be better able to capture benefits associated with interventions to improve the social determinants of health.

摘要

能力方法为医疗保健干预措施的资金决策提供了广泛的评估空间,以能力福祉作为价值的结果。已经为成人健康和保健干预措施的经济评估开发了一系列能力措施。然而,这些措施以前没有为儿童和青少年开发过,因此可能具有价值。本研究旨在确定 11-15 岁儿童和青少年的重要能力,并将这些能力发展为经济衡量标准的属性,以告知资金决策。2019 年 9 月至 2021 年 11 月期间,在英格兰城乡地区对 11-15 岁的儿童和青少年(n=19)和父母(n=14)进行了 33 次深入的定性访谈。目的明确的最大变异抽样确保了来自不同背景的代表性。要求儿童和青少年思考对他们重要的事情,并将这些事情贴在自己的绘画/照片周围的便利贴上;采访询问他们这些重要的事情。要求父母确定增强和负面影响孩子生活质量的因素。使用恒定比较进行的分析促进了对重要能力的相似性和差异性的探索。对儿童和青少年(n=15)进行了第二阶段的半结构化访谈,探讨了这些属性应以何种有意义的方式表达。确定了八个总体能力福祉主题,儿童和青少年以及父母群体之间存在一些差异:乐趣和享受;学习和体验;依恋;情感安全和支持;成就;身份和选择;身体安全;抱负。这些信息可能有助于为儿童和青少年的健康和保健干预措施的经济评估提供一种替代的收益衡量方法,这种方法将更能捕捉与改善健康的社会决定因素相关的干预措施的收益。