先天性心脏瓣膜病患儿面临的挑战与优先事项：心脏瓣膜协作组
Challenges and Priorities for Children With Congenital Valvar Heart Disease: The Heart Valve Collaboratory.
作者信息
Bauser-Heaton Holly, Barry Oliver M, Hofferberth Sophie C, Tretter Justin T, Ma Michael, Goldstone Andrew, Armstrong Aimee, Jones Thomas K, Yoganathan Ajit, Del Nido Pedro
机构信息
Department of Pediatric Cardiology, Children's Healthcare of Atlanta, Emory University, Atlanta, Georgia, USA.
Division of Pediatric Cardiology, New York Presbyterian Hospital, Columbia University Vagelos College of Physician and Surgeons, New York, New York, USA.
出版信息
JACC Adv. 2024 Sep 6;3(10):101191. doi: 10.1016/j.jacadv.2024.101191. eCollection 2024 Oct.
The Heart Valve Collaboratory is a multidisciplinary, patient-centered community of stakeholders addressing complex problems and embracing innovation to help patients with heart valve disease achieve their fullest potential for health. The Scientific Council is composed of cardiologists, surgeons, ex-officio representatives of the Food and Drug Administration and Centers for Medicare and Medicaid Services, National Heart Lung Blood Institute, and representatives from industry partners. In October 2022, this group convened a workshop that included experts from stakeholder groups to address the unmet and clinical needs of patients with pediatric and congenital heart valve disease. The following document includes the discussion and summary of the current state of valve therapy and the needs being addressed for valve development.
心脏瓣膜协作实验室是一个以患者为中心的多学科利益相关者社区，致力于解决复杂问题并拥抱创新，以帮助心脏瓣膜疾病患者充分发挥其健康潜力。科学委员会由心脏病专家、外科医生、食品药品监督管理局和医疗保险与医疗补助服务中心的特邀代表、国家心肺血液研究所的代表以及行业合作伙伴的代表组成。2022年10月，该小组召开了一次研讨会，与会者包括来自利益相关者群体的专家，旨在解决小儿和先天性心脏瓣膜疾病患者未得到满足的临床需求。以下文件包括瓣膜治疗现状的讨论和总结以及瓣膜开发所针对的需求。
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