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社区对神经多样性、残疾模式及自闭症干预的看法:混合方法揭示共同目标与关键矛盾。

Community views of neurodiversity, models of disability and autism intervention: Mixed methods reveal shared goals and key tensions.

作者信息

Dwyer Patrick, Gurba Ava N, Kapp Steven K, Kilgallon Elizabeth, Hersh Lynnette H, Chang David S, Rivera Susan M, Gillespie-Lynch Kristen

机构信息

University of California, Davis, USA.

La Trobe University, Australia.

出版信息

Autism. 2024 Sep 18:13623613241273029. doi: 10.1177/13623613241273029.

DOI:10.1177/13623613241273029
PMID:39291753
Abstract

Some people support the neurodiversity movement and other people criticize it. They often disagree about what the neurodiversity movement means. Confusion about what the neurodiversity movement is makes it hard for people to agree about how best to support autistic or disabled people. We studied autistic and autism community members' views on the neurodiversity movement and autism interventions. Most participants supported the neurodiversity movement. Support for the neurodiversity movement was related to wanting to change society and make places more comfortable for autistic people. Neurodiversity supporters felt autistic children should choose their own intervention goals and that autistic adults should help children choose goals. Neurodiversity supporters did not think autistic people should be taught to act less autistic. Both those agreeing and disagreeing with the neurodiversity movement said that it is important to help autistic people be well. Many participants said that society causes all the difficulties disabled people experience. Yet they were somewhat open to helping people grow by teaching them useful skills and trying to cure depression and epilepsy.. To better help autistic people, we should listen to participants in this study. They called for improving society, building more spaces where autistic people feel comfortable and helping autistic people lead change. They warned against teaching autistic people to hide their autism. Critics of the neurodiversity movement should read this article to better understand what neurodiversity movement supporters believe. By taking time to learn from one another, we can work together to better support autistic people.

摘要

一些人支持神经多样性运动,而另一些人则对其提出批评。他们常常对神经多样性运动的含义存在分歧。对神经多样性运动的困惑使得人们难以就如何最好地支持自闭症患者或残疾人达成共识。我们研究了自闭症患者及自闭症群体成员对神经多样性运动和自闭症干预措施的看法。大多数参与者支持神经多样性运动。对神经多样性运动的支持与希望改变社会、让场所对自闭症患者更友好有关。神经多样性运动的支持者认为自闭症儿童应该自主选择干预目标,自闭症成年人应该帮助儿童选择目标。神经多样性运动的支持者不认为应该教导自闭症患者减少自闭症行为表现。无论是支持还是反对神经多样性运动的人都表示,帮助自闭症患者保持良好状态很重要。许多参与者表示,社会导致了残疾人所经历的所有困难。然而,他们在一定程度上愿意通过教授有用技能、尝试治疗抑郁症和癫痫症来帮助人们成长。为了更好地帮助自闭症患者,我们应该倾听本研究中的参与者的意见。他们呼吁改善社会,建造更多让自闭症患者感到舒适的空间,并帮助自闭症患者引领变革。他们警告不要教导自闭症患者隐藏自己的自闭症特征。神经多样性运动的批评者应该阅读本文,以便更好地理解神经多样性运动支持者的信念。通过花时间相互学习,我们可以共同努力更好地支持自闭症患者。

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本文引用的文献

1
Development and Initial Validation of the Autism and Neurodiversity Attitudes Scale.自闭症与神经多样性态度量表的编制及初步验证
Autism Adulthood. 2025 Feb 5;7(1):39-51. doi: 10.1089/aut.2023.0090. eCollection 2025 Feb.
2
Community Member Views on Autism Intervention: Effects of Closeness to Autistic People with Intellectual Disabilities And Nonspeaking Autistic People.社区成员对自闭症干预的看法:与智障自闭症患者及无语言能力自闭症患者亲近程度的影响。
Autism Adulthood. 2024 Sep 16;6(3):253-271. doi: 10.1089/aut.2023.0202. eCollection 2024 Sep.
3
The Social Validity of Behavioral Interventions: Seeking Input from Autistic Adults.
自闭症中的催产素:从神经多样性视角重新思考治疗与研究
Psychoneuroendocrinology. 2025 Jan;171:107220. doi: 10.1016/j.psyneuen.2024.107220. Epub 2024 Oct 19.
4
Community Member Views on Autism Intervention: Effects of Closeness to Autistic People with Intellectual Disabilities And Nonspeaking Autistic People.社区成员对自闭症干预的看法:与智障自闭症患者及无语言能力自闭症患者亲近程度的影响。
Autism Adulthood. 2024 Sep 16;6(3):253-271. doi: 10.1089/aut.2023.0202. eCollection 2024 Sep.
5
The Neurodiversity Attitudes Questionnaire: Development and Initial Validation.《神经多样性态度问卷:编制与初步验证》。
Autism. 2024 Nov;28(11):2821-2833. doi: 10.1177/13623613241245756. Epub 2024 Apr 28.
行为干预的社会效度:征求成年自闭症患者的意见
J Autism Dev Disord. 2025 Apr;55(4):1172-1186. doi: 10.1007/s10803-024-06297-3. Epub 2024 Mar 12.
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The neurodiversity concept was developed collectively: An overdue correction on the origins of neurodiversity theory.神经多样性概念是集体提出的:神经多样性理论起源的一个迟到的纠正。
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