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行为干预的社会效度:征求成年自闭症患者的意见

The Social Validity of Behavioral Interventions: Seeking Input from Autistic Adults.

作者信息

Baiden Kaitlynn M P, Williams Zachary J, Schuck Rachel K, Dwyer Patrick, Wang Mian

机构信息

Gevirtz Graduate School of Education, University of California, Santa Barbara, USA.

Medical Scientist Training Program, Vanderbilt University School of Medicine, Nashville, USA.

出版信息

J Autism Dev Disord. 2025 Apr;55(4):1172-1186. doi: 10.1007/s10803-024-06297-3. Epub 2024 Mar 12.

Abstract

Many in the autistic community have expressed concerns regarding the use of behavioral interventions with autistic children, suggesting that these interventions may not be socially valid. Though behavioral interventions have evolved to be more naturalistic and child-centered, little structured research has been done to explicitly seek autistic perspectives on the acceptability of specific components of behavioral interventions. Autistic adults (N = 235) were recruited online to take the Autism Intervention Attitudes Scale (AIAS), a questionnaire designed to gather feedback on common intervention goals and practices. Results indicate that participants find goals and practices that highlight quality of life, safety, and autistic interactions acceptable, while those that focus on normalization based on neurotypical standards are not. An exploratory graph analysis revealed three communities of goals ("uncontroversial goals", "controversial goals", and "social goals"). Comparison between naturalistic and structured intervention components additionally showed that autistic participants favored naturalistic strategies. These findings are in line with known criticisms of behavioral intervention from autistic adults, but also provide more information on the specific ways in which behavioral interventions can be reformed. This information can guide professionals in the development of appropriate goals and decisions around intervention planning.

摘要

许多自闭症群体成员对针对自闭症儿童的行为干预措施表示担忧,认为这些干预措施可能缺乏社会效度。尽管行为干预已发展得更加自然主义且以儿童为中心,但很少有系统性研究明确探寻自闭症患者对行为干预具体组成部分可接受性的看法。研究人员在网上招募了235名自闭症成年人,让他们填写自闭症干预态度量表(AIAS),这是一份旨在收集对常见干预目标和做法反馈的问卷。结果表明,参与者认为强调生活质量、安全和自闭症互动的目标及做法是可接受的,而那些基于典型神经标准专注于正常化的目标及做法则不然。一项探索性图表分析揭示了三个目标群体(“无争议目标”、“有争议目标”和“社会目标”)。此外,对自然主义和结构化干预组成部分的比较表明,自闭症参与者更青睐自然主义策略。这些发现与自闭症成年人对行为干预已知的批评意见一致,但也提供了更多关于行为干预可改进的具体方式的信息。这些信息可指导专业人员制定适当的目标以及围绕干预计划做出决策。

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