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基于电子健康的癌症青年幸存者长期随访护理实施的决定因素:一项定性研究。

Determinants of the implementation of eHealth-based long-term follow-up care for young cancer survivors: a qualitative study.

机构信息

Institute of Family Medicine, UKSH Luebeck, Ratzeburger Allee 160, 23562, Luebeck, Germany.

Clinic of Pediatric and Adolescent Medicine, UKSH Luebeck, Ratzeburger Allee 160, 23562, Luebeck, Germany.

出版信息

BMC Cancer. 2024 Sep 18;24(1):1159. doi: 10.1186/s12885-024-12910-6.

DOI:10.1186/s12885-024-12910-6
PMID:39294671
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11411906/
Abstract

BACKGROUND

eHealth may help closing gaps in the long-term follow-up care of former young age cancer patients. While its introduction to medical aftercare appears promising, it also faces obstacles in the course of its implementation. This study explored what prospective eHealth applications have to achieve and what facilitating and hindering factors are associated with the implementation of them.

METHODS

A qualitative, explorative-descriptive design involving semi-structured interviews was used in this study. General practitioners (GPs) from urban and rural areas as well as former cancer patients were recruited and interviewed. The interview guide focused on expectations of telemedical care services for the patient group of children and adolescents as well as potential facilitating and hindering factors of the implementation of telemedical care services for former cancer patients. Interviews were recorded, transcribed and analyzed on the basis of qualitative content analysis as described by Kuckartz.

RESULTS

Empiric saturation was reached after 25 interviews, respectively. The age of the physicians surveyed at the time of the interviews ranged from 27 to 71 years, with an average of 42 years. The former patients ranged in age from 21 to 43 at the time of participation, with an average age of 34. The age at diagnosis ranged from 3 to 31 years. eHealth services were considered an effective way to maintain continuity of care and improve the health literacy of cancer survivors. Cooperation with health insurance companies and gamification-elements were regarded as beneficial for the introduction of eHealth structures. Poor interface compatibility, insufficient network coverage and lack of digital literacy were valued as potential barriers.

CONCLUSIONS

If properly introduced, eHealth shows the potential to provide stakeholders with tools that increase their self-efficacy and ability to act. As the technology continues to advance, our data provides application-oriented factors for tailored implementation strategies to bring eHealth into the field.

摘要

背景

电子健康可能有助于弥补年轻癌症患者长期随访护理的差距。虽然它在医疗后护理中的应用前景广阔,但在实施过程中也面临着障碍。本研究探讨了预期的电子健康应用程序需要实现什么,以及与实施这些应用程序相关的促进和阻碍因素。

方法

本研究采用定性、探索性描述设计,包括半结构化访谈。从城市和农村地区招募了全科医生(GP)和前癌症患者,并对他们进行了访谈。访谈指南侧重于儿童和青少年患者群体对远程医疗服务的期望,以及前癌症患者实施远程医疗服务的潜在促进和阻碍因素。访谈记录、转录和分析基于定性内容分析,如 Kuckartz 所述。

结果

在 25 次访谈后达到了经验饱和。接受调查的医生在接受访谈时的年龄从 27 岁到 71 岁不等,平均年龄为 42 岁。参加访谈的前患者年龄在 21 岁到 43 岁之间,平均年龄为 34 岁。诊断年龄从 3 岁到 31 岁不等。电子健康服务被认为是保持护理连续性和提高癌症幸存者健康素养的有效途径。与健康保险公司合作和游戏化元素被认为有利于引入电子健康结构。界面兼容性差、网络覆盖不足和数字素养缺乏被认为是潜在的障碍。

结论

如果正确引入,电子健康有可能为利益相关者提供增强其自我效能感和行动能力的工具。随着技术的不断进步,我们的数据为量身定制的实施策略提供了面向应用的因素,将电子健康引入该领域。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/72f9/11411906/6082b94473cf/12885_2024_12910_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/72f9/11411906/3f0397e7cf6b/12885_2024_12910_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/72f9/11411906/6082b94473cf/12885_2024_12910_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/72f9/11411906/3f0397e7cf6b/12885_2024_12910_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/72f9/11411906/6082b94473cf/12885_2024_12910_Fig2_HTML.jpg

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