Simard Chantale, Roberge Véronique, St-Pierre Maxime, Cherblanc Jacques, Bergeron-Leclerc Christiane, Kadri Mohamed Abdelhafid, Lacharité Carl, Bérubé Samuel, Lapointe Laurie, Faucher Valérie, Dufresne Sebastien S
Département des sciences de la santé, Université du Québec à Chicoutimi (UQAC), Saguenay, QC, Canada.
Centre Intersectoriel en Santé Durable (CISD), Université du Québec à Chicoutimi (UQAC), Saguenay, QC, Canada.
Front Psychol. 2024 Sep 4;15:1419192. doi: 10.3389/fpsyg.2024.1419192. eCollection 2024.
Advances in pediatric oncology have significantly increased survival rates, yet have introduced challenges in managing long-term treatment side effects. This study process introduces an interdisciplinary clinical intervention program rooted in the family resilience framework, aimed at improving well-being across the cancer trajectory for children and their families, especially those in Canadian communities far from specialized oncology centers with limited access to resources.
Employing an intervention mapping approach, this program collaboratively involves patients, families, professionals, and researchers. It aims to identify vulnerability factors, establish a logic model of change, and devise comprehensive strategies that include professional interventions alongside self-management tools. These strategies, tailored to address biopsychosocial and spiritual challenges, are adapted to the unique contexts of communities distant from specialized cancer treatment centers. A mixed-methods approach will evaluate program effectiveness.
Anticipated outcomes include the empowerment of families with self-management tools and professional support, designed to mitigate biopsychosocial and spiritual complications. By addressing the specific needs and limitations of these communities, the program strives to improve the overall health and well-being of both undergoing treatment and survivorship phases.
By focusing on comprehensive care that includes both professional interventions and self-management, this initiative marks a significant shift toward a holistic, family-centered approach in pediatric oncology care for remote communities. It underlines the necessity of accessible interventions that confront immediate and long-term challenges, aiming to elevate the standard of care by emphasizing resilience, professional support, and family empowerment in underserved areas.
儿科肿瘤学的进展显著提高了生存率，但也给长期治疗副作用的管理带来了挑战。本研究过程引入了一个基于家庭复原力框架的跨学科临床干预项目，旨在改善儿童及其家庭在整个癌症病程中的福祉，尤其是那些位于加拿大社区、远离专业肿瘤中心且资源获取有限的家庭。
该项目采用干预映射方法，让患者、家庭、专业人员和研究人员共同参与。其目的是识别脆弱因素，建立变革逻辑模型，并制定综合策略，包括专业干预和自我管理工具。这些策略针对生物心理社会和精神方面的挑战进行了调整，以适应远离专业癌症治疗中心的社区的独特情况。将采用混合方法评估项目效果。
预期成果包括为家庭提供自我管理工具和专业支持，以减轻生物心理社会和精神方面的并发症。通过满足这些社区的特定需求和限制，该项目致力于改善处于治疗期和康复期的儿童及其家庭的整体健康和福祉。
通过专注于包括专业干预和自我管理在内的全面护理，该倡议标志着在为偏远社区提供儿科肿瘤护理方面朝着以家庭为中心的整体方法迈出了重大转变。它强调了可及干预措施的必要性，这些措施应对即时和长期挑战，旨在通过强调复原力、专业支持和在服务不足地区增强家庭权能来提高护理标准。
