Sperl Lisa, Stamm Tanja, Mosor Erika, Ritschl Valentin, Sivan Manoj, Hoffmann Kathryn, Gantschnig Brigitte
Institute of Outcomes Research, Medical University of Vienna, Vienna, Austria.
Ludwig Boltzmann Institute for Arthritis and Rehabilitation, Vienna, Austria.
Front Med (Lausanne). 2024 Aug 30;11:1401491. doi: 10.3389/fmed.2024.1401491. eCollection 2024.
Experts estimate that in up to 10% of the infected, SARS-CoV-2 would cause persistent symptoms, activity limitations and reduced quality of life. Referred to as long COVID, these conditions might, in the future, specifically impact German-speaking countries due to their higher rates of unvaccinated people compared to other Western countries. Accurate measurement of symptom burden and its consequences is needed to manage conditions such as long COVID, and several tools have been developed to do so. However, no patient-reported instrument existed in the German language at the time of writing.
This study, therefore, aimed to develop a German version of the COVID-19 Yorkshire Rehabilitation Scale (C19-YRS).
We conducted a translation and qualitative evaluation, including cultural adaptation, of the C19-YRS and assessed its face validity. After creating a preliminary version, 26 individuals (14 women [53%]) participated in cognitive interviews (January 2022 to March 2022). Using cognitive debriefing interviews, we ensured the content's comprehensibility. The matrix-framework method guided the qualitative data analysis.
Compared to the original English version, adaptations were necessary, resulting in changes to the introductory text, while the items for recording persistent symptoms were hardly changed.
The German version of the C19-YRS is expected to support standardized long COVID care.
专家估计，在高达10%的感染者中，严重急性呼吸综合征冠状病毒2（SARS-CoV-2）会导致持续症状、活动受限和生活质量下降。这些情况被称为“长新冠”，由于与其他西方国家相比，德语国家未接种疫苗的人群比例更高，未来这些情况可能会对德语国家产生特别的影响。需要准确测量症状负担及其后果来管理“长新冠”等病症，为此已经开发了几种工具。然而，在撰写本文时，还没有德语的患者报告工具。
因此，本研究旨在开发“新冠约克郡康复量表”（C19-YRS）的德语版本。
我们对C19-YRS进行了翻译和定性评估，包括文化调适，并评估了其表面效度。在创建初步版本后，26人（14名女性[53%]）参与了认知访谈（2022年1月至2022年3月）。通过认知反馈访谈，我们确保了内容的可理解性。矩阵框架法指导了定性数据分析。
与原始英文版本相比，有必要进行调整，导致引言部分的文本有所变化，而记录持续症状的条目几乎没有变化。
预计C19-YRS的德语版本将支持标准化的“长新冠”护理。
