Xu Zixin, Han Tianyi, Cheng Lin, Fan Jiaxin, Jiang Yujie, Yan Sang
School of Nursing and Rehabilitation, Nantong University, Nantong, 226007, Jiangsu, China.
Department of Computer Technology, Affiliated Hospital of Nantong University, Nantong, 226007, Jiangsu, China.
Rheumatol Int. 2024 Dec;44(12):2795-2806. doi: 10.1007/s00296-024-05716-z. Epub 2024 Sep 23.
Inflammatory arthritis can result in pain, stiffness, fatigue, and reduce quality of life. Frequent monitoring of disease activity is necessary for patients with inflammatory arthritis, and electronic patient-reported outcomes (ePROs) play a crucial role in this process. This study aimed to investigate the real experience of reporting ePROs in patients with inflammatory arthritis, as well as to identify factors influencing participation. The ultimate goal was to inform targeted strategies and develop interventions to enhance the utilization of ePROs in clinical settings. A scoping review was performed using PubMed, Web of science, Embase, and the Cochrane library from 2000 to the present and the literature search focused on the experience of reporting ePROs in inflammatory arthritis and the factors that influence participation. Screening articles based on inclusion and exclusion criteria. A total of 1478 studies were identified, out of which 26 were included in the review. The top experience of applications/platforms in patients was that they were easy to use and that the applications were clear, logical and intuitive. A summary of 18 potential influencing factors were identified and there was inconsistent evidence for five of these factors. The participation of reporting ePROs is influenced by various factors, and the experience is a crucial aspect in patients with inflammatory arthritis. Analyzing patients' experience and influencing factors provides a theoretical basis for future interventions to facilitate the clinical application of ePRO. However, further research is needed to fully understand the association between influencing factors and intervention outcomes.
炎症性关节炎可导致疼痛、僵硬、疲劳,并降低生活质量。对于炎症性关节炎患者,频繁监测疾病活动情况很有必要,而电子患者报告结局(ePROs)在此过程中发挥着关键作用。本研究旨在调查炎症性关节炎患者报告ePROs的真实体验,并确定影响参与度的因素。最终目标是为有针对性的策略提供信息,并制定干预措施,以提高ePROs在临床环境中的利用率。使用PubMed、科学网、Embase和Cochrane图书馆对2000年至今的文献进行了范围综述,文献检索重点关注炎症性关节炎患者报告ePROs的体验以及影响参与度的因素。根据纳入和排除标准筛选文章。共确定了1478项研究,其中26项被纳入综述。患者对应用程序/平台的主要体验是它们易于使用,且应用程序清晰、逻辑合理且直观。确定了18个潜在影响因素,其中5个因素的证据不一致。报告ePROs的参与度受多种因素影响,而体验是炎症性关节炎患者的一个关键方面。分析患者的体验和影响因素为未来促进ePRO临床应用的干预措施提供了理论基础。然而,需要进一步研究以充分了解影响因素与干预结果之间的关联。