Davies Katharine, Howe Tami, Small Jeff, Hsiung Ging-Yuek Robin
School of Audiology and Speech Sciences, The University of British Columbia Ringgold Standard Institution, Vancouver, Canada, and.
Division of Neurology, The University of British Columbia Ringgold Standard Institution, Vancouver, Canada.
Int J Speech Lang Pathol. 2025 Jun;27(3):423-439. doi: 10.1080/17549507.2024.2388072. Epub 2024 Sep 24.
The research objectives were to explore the communication needs pertaining to (a) people with primary progressive aphasia (PwPPA); (b) family members of PwPPA; and (c) the different variants of primary progressive aphasia (PPA), from the perspectives of speech-language pathologists (SLPs).
This investigation used a qualitatively driven concurrent mixed methods research design. Data collection involved semi-structured interviews and mixed methods questionnaires with 14 SLPs. Qualitative content analysis of interview and questionnaire data was used to identify codes and categories related to the research objectives. Quantitative analysis of questionnaire data involved single item summaries and cross item tabulations.
Analysis revealed eight categories of communication need pertaining to PwPPA and six pertaining to their family members. Results regarding communication needs according to variant of PPA revealed limited findings.
SLPs perceived several important areas of communication need for PwPPA and their family members, highlighting key clinical implications for proactive communication care across the continuum of care. Future research can build on the current findings and integrate the perspectives of PwPPA and their family members on this topic, to develop interventions and explore models of service delivery to meet their progressive and complex communication needs.
研究目标是从言语语言病理学家（SLP）的角度，探索与以下方面相关的沟通需求：（a）原发性进行性失语症患者（PPPA患者）；（b）PPPA患者的家庭成员；以及（c）原发性进行性失语症（PPA）的不同变体。
本研究采用定性驱动的并行混合方法研究设计。数据收集包括对14名言语语言病理学家进行半结构化访谈和混合方法问卷调查。对访谈和问卷数据进行定性内容分析，以确定与研究目标相关的代码和类别。问卷数据的定量分析包括单项汇总和交叉项目列表。
分析揭示了与PPPA患者相关的八类沟通需求和与其家庭成员相关的六类沟通需求。根据PPA变体得出的沟通需求结果显示相关研究结果有限。
言语语言病理学家认识到PPPA患者及其家庭成员在沟通需求方面的几个重要领域，突出了在连续护理过程中进行主动沟通护理的关键临床意义。未来的研究可以基于当前的研究结果，整合PPPA患者及其家庭成员在这个主题上的观点，以开发干预措施并探索服务提供模式，以满足他们不断变化的复杂沟通需求。
