Trust of social media content and risk of making misinformed decisions: Survey of people affected by cancer and their caregivers.

BACKGROUND

This study explores social media (SM) usage and trust in information among cancer patients and their caregivers. We compare socio-demographic characteristics to identify groups more likely to rely on social media for treatment decisions and those less inclined to validate social media information with their provider.

METHODS

A national survey of people diagnosed with cancer and those who were caregivers to people diagnosed with cancer was conducted via online survey in November-December 2021. Socio-demographic factors associated with respondents' use of SM and comfort disclosing SM use were assessed using logistic regression.

FINDINGS

Out of 262 respondents, 65% were likely to use SM to make decisions about lifestyle changes, cancer screening, vaccination, cancer treatment, medical testing, or choosing a provider. SM users were younger (OR = 0.11,  < 0.01), identified as Black (OR = 10.19, p < 0.01), and had less education (OR = 0.86,  = 0.02). Those with less education reported not being comfortable discussing SM with their providers (OR = 1.25, p = 0.01).

DISCUSSION

Results contribute new understanding of the digital divide, highlighting the need for not only improving access to digital information but also the need for a supportive environment that provides patients with dependable methods to verify the authenticity of the information they encounter.