Children's Social Care Research and Development Centre, School of Social Sciences, Cardiff University, Cardiff, United Kingdom.
School of Computer Science & Informatics, Cardiff University, Cardiff, United Kingdom.
JMIR Form Res. 2024 Sep 26;8:e48695. doi: 10.2196/48695.
Burns are common childhood injuries, which can lead to serious physical and psychological outcomes. Appropriate first aid is essential in managing the pain and severity of these injuries; hence, parents who need timely access to such information often seek it from the web. In particular, social media allow them to reach other parents, hence these conversations may provide insight to aid the design and evaluation of burn first aid interventions for parents.
This study aims to determine the feasibility of finding, accessing, and analyzing parent burn first aid conversations on social media to inform intervention research.
The initial choice of the relevant social media was made based on the results of a parent focus group and survey. We considered Facebook (Meta Platforms, Inc), Mumsnet (Mumsnet Limited), Netmums (Aufeminin Group), Twitter (subsequently rebranded as "X"; X Corp), Reddit (Reddit, Inc), and YouTube (Google LLC). To locate the relevant data on these platforms, we collated a taxonomy of search terms and designed a search strategy. A combination of natural language processing and manual inspection was used to filter out irrelevant data. The remaining data were analyzed manually to determine the length of conversations, the number of participants, the purpose of the initial post (eg, asking for or offering advice), burn types, and distribution of relevant keywords.
Facebook parenting groups were not accessed due to privacy, and public influencer pages yielded scant data. No relevant data were found on Reddit. Data were collected from Mumsnet, Netmums, YouTube, and Twitter. The amount of available data varied across these platforms and through time. Sunburn was identified as a topic across all 4 platforms. Conversations on the parenting forums Mumsnet and Netmums were started predominantly to seek advice (112/116, 96.6% and 25/25, 100%, respectively). Conversely, YouTube and Twitter were used mainly to provide advice (362/328, 94.8% and 126/197, 64%, respectively). Contact burns and sunburn were the most frequent burn types discussed on Mumsnet (30/94, 32% and 23/94, 25%, respectively) and Netmums (2/25, 8% and 14/26, 56%, respectively).
This study provides a suite of bespoke search strategies, tailored to a range of social media platforms, for the extraction and analysis of burn first aid conversation data. Our methodology provides a template for other topics not readily accessible via a specific search term or hashtag. YouTube and Twitter show potential utility in measuring advice offered before and after interventions and extending the reach of messaging. Mumsnet and Netmums present the best opportunity for informing burn first aid intervention design via an in-depth qualitative investigation into parents' knowledge, attitudes, and behaviors.
烧伤是儿童常见的意外伤害，可导致严重的身心后果。适当的急救对于管理这些伤害的疼痛和严重程度至关重要；因此，需要及时获取此类信息的父母通常会从网络上获取。特别是，社交媒体使他们能够接触到其他父母，因此这些对话可以为父母烧伤急救干预措施的设计和评估提供信息。
本研究旨在确定在社交媒体上查找、访问和分析父母烧伤急救对话以告知干预研究的可行性。
根据父母焦点小组和调查的结果，最初选择了相关的社交媒体。我们考虑了 Facebook（Meta Platforms, Inc.）、Mumsnet（Mumsnet Limited）、Netmums（Aufeminin Group）、Twitter（随后更名为“X”；X Corp）、Reddit（Reddit, Inc.）和 YouTube（Google LLC）。为了在这些平台上找到相关数据，我们整理了一个分类词汇表，并设计了一个搜索策略。使用自然语言处理和手动检查相结合的方法来筛选出不相关的数据。对剩余的数据进行手动分析，以确定对话的长度、参与者的数量、初始帖子的目的（例如，寻求或提供建议）、烧伤类型以及相关关键词的分布。
由于隐私问题，我们无法访问 Facebook 育儿群组，而公众影响者页面仅提供了少量数据。Reddit 上没有找到相关数据。我们从 Mumsnet、Netmums、YouTube 和 Twitter 上收集了数据。这些平台和时间的可用数据量各不相同。在所有 4 个平台上都发现了晒伤这一话题。Mumsnet 和 Netmums 上的育儿论坛上的对话主要是为了寻求建议（116 次中有 112 次，96.6%和 25 次中有 25 次，100%）。相比之下，YouTube 和 Twitter 主要用于提供建议（328 次中有 362 次，94.8%和 197 次中有 126 次，64%）。在 Mumsnet（30/94，32%和 23/94，25%）和 Netmums（2/25，8%和 14/26，56%）上讨论得最多的烧伤类型是接触烧伤和晒伤。
本研究提供了一套针对一系列社交媒体平台的定制搜索策略，用于提取和分析烧伤急救对话数据。我们的方法为通过特定搜索词或标签无法轻松访问的其他主题提供了模板。YouTube 和 Twitter 显示出在干预前后提供建议以及扩大信息传递范围的潜力。Mumsnet 和 Netmums 通过深入调查父母的知识、态度和行为，为烧伤急救干预措施的设计提供了最佳机会。
