Department of Reproductive Health and Midwifery, Faculty of Medical Sciences, Tarbiat Modares University, Tehran, Iran.
Health Metrics Research Center, Iranian Institute for Health Sciences Research, ACECR, Tehran, Iran.
BMC Pediatr. 2024 Sep 30;24(1):619. doi: 10.1186/s12887-024-05104-3.
Parenting a child with disabilities can feel isolating and overwhelming. Understanding the health challenges of parents with disabled children is essential for providing effective healthcare. This study aims to offer a comprehensive view of the health challenges faced by these parents by synthesizing existing literature from various perspectives.
This scoping review conducted using the JBI scoping review method. Searches were performed on PubMed, Web of Science, Scopus, and Google Scholar databases spanning from 2014 to 2024. The initial search yielded 388 articles, with 24 articles undergoing qualitative assessment and data analysis via narrative synthesis.
From the 24 selected articles, three health challenges were identified: physical, emotional, and social health challenges.
Parents of children with disabilities face intricate health challenges, including physical challenges like fatigue, musculoskeletal pain, and sleep issues. Additionally, they experience significant emotional strain, with symptoms of depression, anxiety, and hopelessness. Social isolation and stigma further compound these challenges. A collaborative approach involving healthcare professionals, policymakers, and support organizations can empower parents to thrive in their caregiving roles.
养育残疾儿童可能会让人感到孤立无援和难以承受。了解残疾儿童父母所面临的健康挑战对于提供有效的医疗保健至关重要。本研究旨在通过综合来自不同视角的现有文献，全面了解这些父母所面临的健康挑战。
本 scoping 综述采用 JBI scoping 综述方法进行。在 2014 年至 2024 年期间，在 PubMed、Web of Science、Scopus 和 Google Scholar 数据库中进行了检索。最初的搜索产生了 388 篇文章，其中 24 篇文章通过叙事综合进行了定性评估和数据分析。
从 24 篇选定的文章中，确定了三个健康挑战：身体、情感和社会健康挑战。
残疾儿童的父母面临着复杂的健康挑战，包括身体挑战，如疲劳、肌肉骨骼疼痛和睡眠问题。此外，他们还经历了严重的情绪压力，表现为抑郁、焦虑和绝望等症状。社会孤立和污名将进一步加剧这些挑战。涉及医疗保健专业人员、政策制定者和支持组织的协作方法可以使父母能够在他们的照顾角色中茁壮成长。
