Hughes Olivia, Shelton Katherine H, Penny Helen, Thompson Andrew R
School of Psychology, Cardiff University, Cardiff, UK.
Aneurin Bevan University Health Board, UK.
Behav Cogn Psychother. 2024 Nov;52(6):561-580. doi: 10.1017/S1352465824000341. Epub 2024 Sep 30.
Parents of children with skin conditions can experience stress from the additional responsibilities of care. However, there is a lack of psychological interventions for families affected by a dermatological diagnosis.
To investigate (1) whether delivering the 'Living in the Present' mindfulness curriculum to parents of children with skin conditions reduced stress and increased both parental/child quality of life (QoL), and (2) determine intervention acceptability.
Ten parents of children with eczema, ectodermal dysplasia, ichthyosis, and alopecia took part in a mindfulness-based intervention. Using mixed methods, a single-group experimental case design (SCED) was conducted and supplemented by thematic analysis of exit interviews. Parents completed idiographic measures of parenting stress, standardised measures of QoL, stress, mindfulness, and took part in exit interviews. Children also completed QoL measures.
Tau-U analysis of idiographic measures revealed three parents showed some significant improvements in positive targets, and five parents showed some significant improvements in negative targets. Assessment of reliable change demonstrated that: one parent showed improvement in mindful parenting, three parents showed improvement in parenting stress, seven parents showed improvement in anxiety, three parents showed improvements in depression, six parents showed improvement in QoL, and four children showed improvement in QoL. However, two parents showed increased anxiety. Thematic analysis revealed positive changes to mood following mindfulness, although challenges were highlighted, including sustaining home practice.
Findings suggest this specific form of mindfulness intervention could be effective for parents of children with skin conditions; however, further robust studies are needed.
患有皮肤病的儿童的父母可能会因额外的护理责任而感到压力。然而，对于受皮肤病诊断影响的家庭，缺乏心理干预措施。
调查（1）向患有皮肤病的儿童的父母提供“活在当下”正念课程是否能减轻压力并提高父母/孩子的生活质量（QoL），以及（2）确定干预措施的可接受性。
十位患有湿疹、外胚层发育不良、鱼鳞病和脱发的儿童的父母参加了基于正念的干预。采用混合方法，进行了单组实验案例设计（SCED），并辅以对退出访谈的主题分析。父母完成了育儿压力的个性化测量、生活质量、压力、正念的标准化测量，并参加了退出访谈。儿童也完成了生活质量测量。
对个性化测量的Tau-U分析显示，三位父母在积极目标上有一些显著改善，五位父母在消极目标上有一些显著改善。可靠变化评估表明：一位父母在正念育儿方面有所改善，三位父母在育儿压力方面有所改善，七位父母在焦虑方面有所改善，三位父母在抑郁方面有所改善，六位父母在生活质量方面有所改善，四位儿童在生活质量方面有所改善。然而，两位父母的焦虑增加。主题分析显示，正念后情绪有积极变化，尽管也突出了一些挑战，包括维持家庭练习。
研究结果表明，这种特定形式的正念干预可能对患有皮肤病的儿童的父母有效；然而，需要进一步进行有力的研究。
