Poamaneagra Silvia Cristina, Tataranu Elena, Stefanescu Gabriela, Andronic Cristiana Mihaela, Balan Gheorghe G, Gilca-Blanariu Georgiana Emmanuela, Ioniuc Ileana, Mihai Catalina, Anchidin-Norocel Liliana, Diaconescu Smaranda
Pediatrics, George Emil Palade University of Medicine, Pharmacy, Science, and Technology, Targu Mures, ROU.
Pediatrics, Faculty of Medicine and Biological Sciences, Stefan cel Mare University of Suceava, Suceava, ROU.
Cureus. 2024 Aug 29;16(8):e68092. doi: 10.7759/cureus.68092. eCollection 2024 Aug.
Due to recent advances in healthcare, more and more teenagers with chronic diseases emerge into adulthood, posing challenges for both pediatric and adult healthcare systems. The transition from pediatric to adult healthcare settings presents a complex and pivotal phase for adolescents managing chronic conditions. This process necessitates collaboration among adolescents, parents, pediatric specialists, and adult healthcare providers.
This study aims to assess the current practices of doctors caring for teenagers with chronic digestive diseases and to identify the needs and barriers experienced by professionals during the transition of their patients.
In order to achieve the aims of this study, we employed a cross-sectional survey study. Pediatric gastroenterologists (PG), general pediatricians (GP), adult gastroenterologists (AG), and primary care physicians (PCP) applied a 20-closed multiple-choice questionnaire.
There were 70 responders; 90% did not follow a transition program. The ideal age for beginning the transition was considered 16-17 (51.4%), and the transfer was recommended at 19-20 years of age by 42.9% and at 18 by 45.7%. Regarding the resources, 78.55% required an online platform, 58.55% solicited transition readiness assessments, 51.41% identified online forms distributed through social media, 48.55% selected brochures for patients and families, and a guideline for medical practitioners. Both GPs and PGs (0.836, p<0.05) requested higher numbers of resources. Identified barriers were the absence of a transition expert (65.7%), lack of time for individualized transition programs (61.41%), patients' psycho-emotional attachment to the pediatric team (52.84%), and adolescents' lack of disease knowledge (57.13%).
Investigating the roles and challenges faced by healthcare professionals during the transitional period is crucial for optimizing continuity of care, enhancing patient outcomes, and addressing systemic gaps in healthcare delivery. We identified valuable tools that could be used in transition programs applicable to all institutions caring for adolescents with chronic diseases.
由于近期医疗保健领域的进展，越来越多患有慢性病的青少年步入成年期，这给儿科和成人医疗保健系统都带来了挑战。从儿科医疗环境向成人医疗环境的过渡，对于管理慢性病的青少年而言是一个复杂且关键的阶段。这一过程需要青少年、家长、儿科专家和成人医疗服务提供者之间的协作。
本研究旨在评估照料患有慢性消化系统疾病青少年的医生的当前做法，并确定专业人员在患者过渡期间所经历的需求和障碍。
为实现本研究的目的，我们采用了横断面调查研究。儿科胃肠病学家（PG）、普通儿科医生（GP）、成人胃肠病学家（AG）和初级保健医生（PCP）应用了一份包含20道封闭式多项选择题的问卷。
有70名应答者；90%未遵循过渡计划。开始过渡的理想年龄被认为是16 - 17岁（51.4%），42.9%建议在19 - 20岁时转诊，45.7%建议在18岁时转诊。关于资源，78.55%需要一个在线平台，58.55%要求进行过渡准备评估，51.41%确定通过社交媒体分发的在线表格，48.55%选择为患者和家庭提供的宣传册以及一份针对执业医生的指南。全科医生和儿科胃肠病学家（0.836，p<0.05）都要求更多的资源。已确定的障碍包括缺乏过渡专家（65.7%）、缺乏开展个性化过渡计划的时间（61.41%）、患者对儿科团队的心理情感依恋（52.84%）以及青少年缺乏疾病知识（57.13%）。
调查医疗保健专业人员在过渡期间所面临的角色和挑战，对于优化连续护理、改善患者结局以及解决医疗服务提供中的系统性差距至关重要。我们确定了可用于适用于所有照料患有慢性病青少年机构的过渡计划的有价值工具。
