Splane Jennifer, Doucet Shelley, Luke Alison
Faculty of Health, Dalhousie University, Halifax, NS, Canada.
Department of Nursing & Health Sciences, University of New Brunswick Saint John, Saint John, NB, Canada.
J Child Health Care. 2025 Jun;29(2):324-338. doi: 10.1177/13674935231202870. Epub 2023 Sep 20.
Complex paediatric health conditions are increasingly associated with survival into adulthood resulting in more youth with complex care needs (CCN) transitioning from paediatric to adult healthcare. Current transition practices, when present, are disorganized, resulting in health status deterioration and complications due to unmet needs. The aim of this qualitative descriptive study is to develop a broader understanding of the current transition practices and experiences, as well as recommendations of care providers who support youth with CCN in the transition from paediatric to adult healthcare. Fifteen care providers from two Eastern Canadian provinces were interviewed using a semi-structured interview guide. The data collected were analyzed using inductive thematic analysis following the six phases outlined by Braun and Clarke (2006). The findings from this research demonstrate (1) a shortage of care providers, (2) inconsistent timing for transition initiation, and (3) lack of available community resources and services. Participant recommendations include (1) a designated transition coordinator; (2) transition policy implementation; (3) improved collaboration between and across care teams; and (4) the integration of virtual care to facilitate the transition process. The results of this study can potentially improve transition practices and policies and guide future research in this area.
复杂的儿科健康状况越来越多地与成年后的生存相关联，导致更多有复杂护理需求（CCN）的年轻人从儿科医疗过渡到成人医疗。目前的过渡做法（如果有的话）杂乱无章，由于需求未得到满足，导致健康状况恶化和出现并发症。这项定性描述性研究的目的是更广泛地了解当前的过渡做法和经历，以及为支持有CCN的年轻人从儿科医疗过渡到成人医疗的护理提供者提供建议。使用半结构化访谈指南对来自加拿大东部两个省份的15名护理提供者进行了访谈。按照Braun和Clarke（2006年）概述的六个阶段，采用归纳主题分析法对收集到的数据进行了分析。这项研究的结果表明：（1）护理提供者短缺；（2）过渡开始时间不一致；（3）缺乏可用的社区资源和服务。参与者的建议包括：（1）指定一名过渡协调员；（2）实施过渡政策；（3）改善护理团队之间及跨团队的协作；（4）整合虚拟护理以促进过渡过程。本研究结果可能会改善过渡做法和政策，并为该领域的未来研究提供指导。
