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神经多样性围产期体验 - 自闭症和注意缺陷多动障碍的系统文献综述。

The neurodivergent perinatal experience - A systematic literature review on autism and attention deficit hyperactivity disorder.

机构信息

School of Nursing and Midwifery, Edith Cowan University, 270 Joondalup Drive, Jata # 0459464259, Joondalup, WA 6027, Australia.

出版信息

Women Birth. 2024 Nov;37(6):101825. doi: 10.1016/j.wombi.2024.101825. Epub 2024 Oct 2.

Abstract

BACKGROUND

Neurodivergent individuals often face unique challenges during the perinatal period, which can significantly impact their experiences of pregnancy, childbirth, and early parenting. Despite growing awareness of neurodiversity, there remains a gap in perinatal care that fully addresses the lived experiences and needs of those with neurodivergent conditions such as Autism (ASD) and Attention-Deficit/Hyperactivity Disorder (ADHD).

OBJECTIVE

To compile and analyse recent literature on the perinatal experiences of neurodivergent parturients. To provide an overview of current knowledge, identify prevalent challenges, and suggest opportunities for improving perinatal services. Additionally, we aim to highlight research gaps that guide future studies and enhance care quality for neurodivergent individuals during the perinatal period.

METHODS

The Systematic Reviews methodological process was utilised to search relevant scientific databases to gather current research articles on neurodivergent perinatal experiences. Eleven studies met the inclusion criteria and were appraised using a rigorous quality checklist. Thematic analysis identified recurring themes across the selected papers.

RESULTS

Three major themes emerged: Care provider support, Perinatal mental health needs, and Resilience and growth of neurodivergent parturients. These themes highlight significant differences in perinatal experiences between neurodivergent and neurotypical individuals, underscoring the need for tailored care approaches.

CONCLUSION

The findings reveal that current perinatal care practices do not adequately address the specific challenges faced by perinatal neurodivergent individuals. There is a critical need for perinatal care systems to integrate neurodiversity-affirming practices. Future research should consider intersectionality to include marginalised and underrepresented neurodivergent voices.

摘要

背景

神经多样性个体在围产期常常面临独特的挑战,这会对他们的怀孕、分娩和育儿经历产生重大影响。尽管对神经多样性的认识不断提高,但在围产期护理方面仍存在差距,无法充分满足具有神经多样性条件(如自闭症 (ASD) 和注意力缺陷/多动障碍 (ADHD))的个体的实际体验和需求。

目的

综合分析围产期神经多样性产妇的近期文献。概述当前的知识,确定普遍存在的挑战,并提出改善围产期服务的机会。此外,我们旨在突出研究空白,以指导未来的研究并提高围产期神经多样性个体的护理质量。

方法

采用系统综述方法,检索相关科学数据库,收集有关神经多样性围产期体验的现有研究文章。符合纳入标准的 11 项研究,并使用严格的质量检查表进行评估。主题分析确定了所选论文中反复出现的主题。

结果

出现了三个主要主题:护理提供者的支持、围产期心理健康需求以及神经多样性产妇的韧性和成长。这些主题突出了神经多样性和神经典型个体在围产期体验方面的显著差异,强调了需要采用量身定制的护理方法。

结论

研究结果表明,当前的围产期护理实践无法充分解决围产期神经多样性个体所面临的特定挑战。围产期护理系统迫切需要整合肯定神经多样性的实践。未来的研究应考虑交叉性,以包括边缘化和代表性不足的神经多样性声音。

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