Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia.
School of Nursing, University of Tasmania, Hobart, Tasmania, Australia.
J Clin Nurs. 2024 Dec;33(12):4677-4691. doi: 10.1111/jocn.17462. Epub 2024 Oct 9.
To explore the care experiences of informal carers of people with chronic conditions in hospitals and identify areas for improvement in the context of comprehensive care delivery.
A explanatory sequential mixed-method study.
This study was conducted, involving a survey with 182 carers and interviews with 31 carers of individuals who attended an Australian hospital. Descriptive analysis of quantitative data was performed using RStudio, while thematic analysis of qualitative data was conducted using NVivo.
The findings revealed seven overarching components of care that influenced carers' hospital experiences and their perceptions of care quality. Areas requiring improvement were identified within these categories.
This review identifies common perspectives of informal carers of people with chronic conditions in hospital settings and highlights important areas that require attention to improve carers' hospital care experiences. Carers should be welcomed, involved, informed and supported during hospital attendance to foster the most positive care experiences.
Healthcare professionals should involve carers in assessment, shared decision-making and the care process and recognise and address carers' needs.
The findings revealed the carer's hospital experiences in the context of comprehensive care delivery and identified areas requiring improvement.
The CROSS and the COREQ guidelines were followed.
The study protocol was presented to stakeholders from two hospitals in Australia, a Patient and Carer Advisory Board (attached to the parent project: evaluating Quality of Care (eQC)) and the Australian Commission on Safety and Quality in Health Care, and discussions were held to assess the relevance and significance of this study to clinical practice and health policy.
探索在综合护理服务背景下，慢性疾病患者非专业照护者在医院的护理体验，并确定需要改进的领域。
解释性序贯混合方法研究。
本研究对 182 名照护者进行了调查，并对 31 名在澳大利亚医院就诊的个体的照护者进行了访谈。使用 RStudio 对定量数据进行描述性分析，使用 NVivo 对定性数据进行主题分析。
研究结果揭示了影响照护者医院体验和对护理质量看法的七个整体护理组成部分。在这些类别中确定了需要改进的领域。
本综述确定了慢性疾病患者非专业照护者在医院环境中的常见观点，并强调了需要关注的重要领域，以改善照护者的医院护理体验。在患者就诊期间，应欢迎、参与、告知和支持照护者，以促进最积极的护理体验。
医疗保健专业人员应在评估、共同决策和护理过程中让照护者参与，并认识和满足照护者的需求。
研究结果揭示了综合护理服务背景下照护者的医院体验，并确定了需要改进的领域。
遵循了 CROSS 和 COREQ 指南。
该研究方案提交给了澳大利亚两家医院的利益相关者、一个患者和照护者咨询委员会（附属于主要项目：评估护理质量（eQC））和澳大利亚安全和质量卫生保健委员会，并进行了讨论，以评估本研究对临床实践和卫生政策的相关性和重要性。
