Corbière Tourane, Gayet-Ageron Angèle, Laroussi-Libeault Lisa, Jonniaux Sandrine, Elia Nadia
Patiente partenaire, Réseau PartnerREC, Hôpitaux universitaires de Genève, 1211 Genève 14.
Réseau PartnerREC, Service d'épidémiologie clinique et Unité d'appui méthodologique, Centre de recherche clinique, Hôpitaux universitaires de Genève, 1211 Genève 14.
Rev Med Suisse. 2024 Oct 9;20(890):1825-1829. doi: 10.53738/REVMED.2024.20.890.1825.
The PartnerREC network at the Geneva University Hospitals aims to facilitate the collaboration between researchers and patient partners in any type of clinical research, mainly those led at the HUG. It is the result of a coconstruction process initiated in 2019 by physicians, research professionals, cantonal research ethics committee members, a lawyer, and patient partners. The network implemented four initiatives: a) a website providing information to researchers and patients participating to research projects; b) personalized counseling for researchers to explore partnership opportunities in their own research projects; c) a training program related to patient partnership in research developed together with different partners in French-speaking Switzerland and d) its own research program on partnership in clinical research.
日内瓦大学医院的PartnerREC网络旨在促进研究人员与患者合作伙伴在任何类型临床研究中的合作，主要是在日内瓦大学医院主导开展的研究。它是由医生、研究专业人员、州研究伦理委员会成员、一名律师和患者合作伙伴于2019年发起的共建过程的成果。该网络实施了四项举措：a）一个网站，为参与研究项目的研究人员和患者提供信息；b）为研究人员提供个性化咨询，以探索其自身研究项目中的合作机会；c）与瑞士法语区的不同合作伙伴共同制定的一项关于研究中患者合作的培训计划；d）其自身关于临床研究合作的研究计划。
