Disability Health Research Center, Johns Hopkins University, Baltimore, Maryland, USA.
UNC at Chapel Hill, Frank Porter Graham Child Development Institute, Chapel Hill, North Carolina, USA.
Autism Res. 2024 Nov;17(11):2198-2222. doi: 10.1002/aur.3243. Epub 2024 Oct 10.
Gaps in research knowledge pertaining to resiliency factors and strengths among the Black autism community, inclusive of autistic persons and their support system exist. A scoping review was conducted to further explore quantitative, qualitative, and mixed methods studies that investigate resiliency factors and related strengths in the Black autism community in the United States. A total of 436 articles were identified, with 28 studies included in the final review. Results demonstrated that (1) strengths of Black autistic persons across the life course have been disregarded in research; (2) Black caregiver advocacy, while common, is also a developmental process that can be supported by community-based interventions; (3) informal supports including family and friends play an instrumental role in supporting the well-under investigated being of Black parents of autistic children; and (4) spirituality is often endorsed by Black caregivers of autistic children, such as playing a role in acceptance of the autism diagnosis and with coping with difficult life situations. Research and practice implications are discussed.
黑人自闭症群体的适应力因素和优势相关的研究知识存在空白，包括自闭症患者及其支持系统。进行了一次范围综述，以进一步探索调查美国黑人自闭症群体适应力因素和相关优势的定量、定性和混合方法研究。总共确定了 436 篇文章，其中有 28 项研究纳入最终综述。结果表明：(1)黑人自闭症患者在整个生命周期中的优势在研究中被忽视；(2)黑人照顾者的倡导虽然很常见，但也是一个发展过程，可以通过基于社区的干预措施来支持；(3)包括家人和朋友在内的非正式支持在支持黑人父母照顾自闭症儿童方面发挥了重要作用，而这方面研究很少；(4)自闭症儿童的黑人照顾者经常认可灵性，例如在接受自闭症诊断和应对困难生活情况方面发挥作用。讨论了研究和实践的影响。
