Simmons Margaret, Carolus Gabriela, Kalla Mahima
Monash Rural Health, Monash University, Faculty of Medicine Nursing and Health Sciences, Traralgon, Victoria, Australia.
Division of Health System and Public Health, Department of Global Health, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South Africa
Med Humanit. 2025 Feb 24;51(1):96-101. doi: 10.1136/medhum-2024-012918.
As a research technique, poetic transcription transforms people's stories and enables deeper analysis and engagement between participants, readers and researchers. Chronic illness is often characterised as a 'biographical disruption', which may threaten a patient's self-identity and equanimity. Such disruptions often influence patients' perceptions of imminent life changes, social relationships and cognitive and material resources. Thus, poetic transcription offers a valuable tool for making sense of complex illnesses and lived experiences. This paper demonstrates how raw interview data can be reconstructed into a poetic format to highlight the nuances of people's lived illness experiences, which may remain elusive to them and others. A qualitative survey was conducted with a small group of patient participants, eliciting chronic illness narratives analysed through poetic transcription. Poetic transcription becomes a rigorous and legitimate qualitative research method through multiple iterations and extensive data engagement. Our main themes are focused on biographical disruption, temporality, humour, voice and ableism.
作为一种研究技术，诗意转录改变了人们的故事，使参与者、读者和研究人员之间能够进行更深入的分析和互动。慢性病常被描述为一种“传记式的扰乱”，这可能会威胁到患者的自我认同和平和心态。这种扰乱常常影响患者对即将到来的生活变化、社会关系以及认知和物质资源的认知。因此，诗意转录为理解复杂疾病和生活经历提供了一个有价值的工具。本文展示了如何将原始访谈数据重构为诗意的形式，以突出人们患病生活经历的细微差别，这些差别可能对他们自己和其他人来说都难以捉摸。我们对一小群患者参与者进行了定性调查，引出了通过诗意转录分析的慢性病叙述。通过多次迭代和广泛的数据处理，诗意转录成为一种严谨且合理的定性研究方法。我们的主要主题集中在传记式扰乱、时间性、幽默、声音和对残障者的歧视。
