Kabata Faith
Dev World Bioeth. 2024 Oct 15. doi: 10.1111/dewb.12466.
Human genomics research with indigenous peoples has often been characterised by tension between the 'western' science ideologies and indigenous peoples' cultural beliefs in relation to their human genetic resources and data. This article explores this tension from the lens of the concept of indigenous peoples' human genomic sovereignty and tests the applicability of the concept in Africa. The article achieves this by first highlighting the tension between 'western' science and indigenous peoples through three case studies from Canada, the USA, and South Africa. It then analyses indigenous peoples' human genomic sovereignty in the USA and Canada and compares it with the notion of indigenous peoples' sovereignty in Africa. The article concludes by highlighting lessons that indigenous groups in Africa can draw from the USA and Canada in their quest for human genomic sovereignty.
针对原住民开展的人类基因组学研究，往往体现出“西方”科学理念与原住民在人类遗传资源及数据方面的文化信仰之间的矛盾。本文从原住民人类基因组主权概念的视角探讨这一矛盾，并检验该概念在非洲的适用性。本文首先通过加拿大、美国和南非的三个案例研究，凸显“西方”科学与原住民之间的矛盾，进而分析美国和加拿大的原住民人类基因组主权，并将其与非洲原住民主权概念进行比较。文章最后强调非洲原住民群体在追求人类基因组主权的过程中，可以从美国和加拿大汲取的经验教训。
