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远程测量技术中个体患有抑郁症、癫痫和多发性硬化症的数据可视化偏好:定性研究。

Data Visualization Preferences in Remote Measurement Technology for Individuals Living With Depression, Epilepsy, and Multiple Sclerosis: Qualitative Study.

机构信息

Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom.

Remote Assessment of Disease And Relapse - Central Nervous System Patient Advisory Board, King's College London, London, United Kingdom.

出版信息

J Med Internet Res. 2024 Oct 18;26:e43954. doi: 10.2196/43954.

Abstract

BACKGROUND

Remote measurement technology (RMT) involves the use of wearable devices and smartphone apps to measure health outcomes in everyday life. RMT with feedback in the form of data visual representations can facilitate self-management of chronic health conditions, promote health care engagement, and present opportunities for intervention. Studies to date focus broadly on multiple dimensions of service users' design preferences and RMT user experiences (eg, health variables of perceived importance and perceived quality of medical advice provided) as opposed to data visualization preferences.

OBJECTIVE

This study aims to explore data visualization preferences and priorities in RMT, with individuals living with depression, those with epilepsy, and those with multiple sclerosis (MS).

METHODS

A triangulated qualitative study comparing and thematically synthesizing focus group discussions with user reviews of existing self-management apps and a systematic review of RMT data visualization preferences. A total of 45 people participated in 6 focus groups across the 3 health conditions (depression, n=17; epilepsy, n=11; and MS, n=17).

RESULTS

Thematic analysis validated a major theme around design preferences and recommendations and identified a further four minor themes: (1) data reporting, (2) impact of visualization, (3) moderators of visualization preferences, and (4) system-related factors and features.

CONCLUSIONS

When used effectively, data visualizations are valuable, engaging components of RMT. Easy to use and intuitive data visualization design was lauded by individuals with neurological and psychiatric conditions. Apps design needs to consider the unique requirements of service users. Overall, this study offers RMT developers a comprehensive outline of the data visualization preferences of individuals living with depression, epilepsy, and MS.

摘要

背景

远程测量技术(RMT)涉及使用可穿戴设备和智能手机应用程序来测量日常生活中的健康结果。以数据可视化表示形式提供反馈的 RMT 可以促进慢性病的自我管理,促进医疗保健参与,并提供干预机会。迄今为止的研究主要关注服务用户的设计偏好和 RMT 用户体验的多个方面(例如,感知重要性的健康变量和提供的医疗建议的感知质量),而不是数据可视化偏好。

目的

本研究旨在探讨 RMT 中的数据可视化偏好和优先级,研究对象为患有抑郁症、癫痫和多发性硬化症(MS)的个体。

方法

一项三角型定性研究,通过比较和主题综合焦点小组讨论与现有自我管理应用程序的用户评论以及对 RMT 数据可视化偏好的系统评价来进行。共有 45 人参与了 3 种健康状况(抑郁症、n=17;癫痫、n=11;MS、n=17)的 6 个焦点小组。

结果

主题分析验证了一个围绕设计偏好和建议的主要主题,并确定了另外四个次要主题:(1)数据报告,(2)可视化的影响,(3)可视化偏好的调节因素,以及(4)系统相关因素和功能。

结论

当数据可视化被有效地使用时,它是 RMT 有价值且吸引人的组成部分。具有神经和精神疾病的个体称赞了易于使用和直观的数据可视化设计。应用程序设计需要考虑服务用户的独特需求。总体而言,这项研究为 RMT 开发人员提供了患有抑郁症、癫痫和 MS 的个体的数据可视化偏好的综合概述。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0aa3/11530729/00a1a438b9ba/jmir_v26i1e43954_fig1.jpg

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