云端基因组数据科学的伦理治理
Ethical governance for genomic data science in the cloud.
作者信息
Rahimzadeh Vasiliki, Nelson Sarah C, Thorogood Adrian, Lawson Jonathan, Fullerton Stephanie M
机构信息
Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA.
Department of Biostatistics, University of Washington, Seattle, WA, USA.
出版信息
Nat Rev Genet. 2025 Feb;26(2):75-77. doi: 10.1038/s41576-024-00789-9.
Abstract
Cloud platforms offer distinct advantages, but questions remain about how to ethically and efficiently manage human genomic data in the cloud. Data governance needs to be adapted to ensure transparency and security for research participants, as well as equitable and sustainable access for researchers.
摘要
云平台具有显著优势，但在如何以符合道德且高效的方式管理云中的人类基因组数据方面，问题依然存在。数据治理需要做出调整，以确保研究参与者的透明度和安全性，以及研究人员能够公平且可持续地获取数据。
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