Izquierdo Rebeca, Suárez-García Inés, Gómez-García Teresa, Marco-Sánchez Cristina, Puente-Ferreiro Julián, Moreno Cristina, Diaz Asunción, Cabello-Clotet Noemí, Vinuesa David, Blanco José Luis, Melús Estrella, Gómez-Ayerbe Cristina, Olalla Julián, Riera Melchor, Bernardino José Ignacio, de López Bernaldo de Quirós Juan Carlos, Moreno Santiago, Jarrín Inma
National Centre for Epidemiology, Carlos III Health Institute, Madrid, Spain.
CIBERINFEC, Carlos III Health Institute, Madrid, Spain.
HIV Med. 2025 Feb;26(2):308-318. doi: 10.1111/hiv.13726. Epub 2024 Oct 25.
We assessed the opinions of physicians caring for people with HIV (PWH) from the multicentre Spanish CoRIS cohort regarding the assessment of health-related quality of life (HRQoL).
We designed an online self-administered questionnaire comprising 27 structured questions across four domains: (i) sociodemographic and clinical data; (ii) usefulness of measuring HRQoL; (iii) information, training and resource needed; and (iv) whether and how HRQoL should be measured. Physicians completed the questionnaire between April and June 2023.
Of 131 physicians surveyed [53.8% men, median age 52 years (interquartile range: 42-60)], 90.9% and 88.6% agreed that measuring HRQoL is useful for both PWH and medical decision-making, respectively. However, 67.2% needed training on what HRQoL is and how to measure it, 79.4% required information on validated tools, and 80.9% felt that clinical guidelines are needed. Overall, 90.1% of physicians agreed that HRQoL should be measured among PWH. Most physicians (82.8%) supported using specific scales for PWH, with 74.1% recommending annual measurement, 49.1% suggesting that nurses from HIV units conduct the assessments, and 43.1% favouring personal interviews during medical visits. At the time of the survey, 55.3% of physicians did not measure HRQoL in any patients due to time or resource constraints (75.8%).
Despite the recognized importance of HRQoL measurement in PWH, Spanish physicians encounter barriers such as time constraints and limited resources. Developing clear guidelines, using tailored scales, and integrating digital tools along with multidisciplinary support could enhance routine HRQoL assessments and improve patient-centred care.
我们评估了来自西班牙多中心CoRIS队列中为艾滋病毒感染者（PWH）提供护理的医生对健康相关生活质量（HRQoL）评估的看法。
我们设计了一份在线自填问卷，包含四个领域的27个结构化问题：（i）社会人口统计学和临床数据；（ii）测量HRQoL的有用性；（iii）所需的信息、培训和资源；（iv）是否以及如何测量HRQoL。医生们于2023年4月至6月完成了问卷。
在131名接受调查的医生中[53.8%为男性，年龄中位数为52岁（四分位间距：42 - 60岁）]，分别有90.9%和88.6%的医生同意测量HRQoL对PWH和医疗决策都有用。然而，67.2%的医生需要关于HRQoL是什么以及如何测量的培训，79.4%的医生需要关于经过验证的工具的信息，80.9%的医生认为需要临床指南。总体而言，90.1%的医生同意应该对PWH进行HRQoL测量。大多数医生（82.8%）支持使用针对PWH的特定量表，74.1%的医生建议每年测量一次，49.1%的医生建议由艾滋病毒科室的护士进行评估，43.1%的医生倾向于在就诊期间进行个人访谈。在调查时，55.3%的医生由于时间或资源限制（75.8%）没有对任何患者进行HRQoL测量。
尽管认识到测量PWH的HRQoL很重要，但西班牙医生面临时间限制和资源有限等障碍。制定明确的指南、使用量身定制的量表以及整合数字工具并提供多学科支持，可能会加强常规的HRQoL评估并改善以患者为中心的护理。
