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巴西:COPD 及其对参与社区体育活动的心理影响的生活状况:一项定性研究。Breathe Well 小组的研究结果。

Living with COPD and its psychological effects on participating in community-based physical activity in Brazil: a qualitative study. Findings from the Breathe Well group.

机构信息

Center for Public Health Studies (CESCO) at the University Center of the ABC Medical School, São Paulo, Brazil.

Health Services Management Centre, School of Social Policy and Society, University of Birmingham, Birmingham, UK.

出版信息

NPJ Prim Care Respir Med. 2024 Oct 25;34(1):33. doi: 10.1038/s41533-024-00386-7.

Abstract

Physical activity (PA) improves dyspnoea, psychological wellbeing and quality of life (QoL) for people with COPD reducing their risk of exacerbation. However, engagement in PA is low especially amongst those with anxiety and depression, and PA programmes are limited in countries with limited resources such as Brazil. We explored perceptions of 21 people with COPD about the impact of their disease on taking part in community-based PA programmes in Sao Paulo, Brazil through semi-structured telephone interviews from October 2020 to April 2021. Discussions were audio-recorded, transcribed, and analysed using the Framework method. Five themes were identified: Knowledge about COPD and its management; Self-perception of life with COPD; Knowledge and experiences of depression and anxiety; Opinions on PA and repercussions of COVID-19. PA was considered to be important in bringing physical and mental health benefits but there were barriers in accessibility of formal PR programmes and therefore local community PA programmes were considered to be important. People with mental health conditions tended to view PA more negatively. COVID-19 had reduced PA opportunities, access to COPD treatment and social interaction, and was associated with more exacerbations and emotional suffering. In general, this study showed an urgent need to improve knowledge about COPD and its risk factors and management among both patients, the public and primary healthcare professionals. We provide important content for the formulation of public policies for the implementation of specific activity programmes for people with COPD in community spaces using local resources and intersectoral partnerships.

摘要

身体活动(PA)可改善 COPD 患者的呼吸困难、心理幸福感和生活质量(QoL),降低其恶化风险。然而,PA 的参与率很低,尤其是在那些患有焦虑和抑郁的人群中,而在资源有限的国家(如巴西),PA 计划有限。我们通过 2020 年 10 月至 2021 年 4 月的半结构式电话访谈,探索了 21 名巴西圣保罗 COPD 患者对其疾病对参与社区基础 PA 计划的影响的看法。讨论内容被录音、转录,并使用框架方法进行分析。确定了五个主题:对 COPD 及其管理的认识;对 COPD 生活的自我认知;对抑郁和焦虑的知识和经验;对 PA 的看法以及 COVID-19 的影响。PA 被认为对身心健康都有重要的好处,但由于正式的 PR 计划难以获得,因此当地社区 PA 计划被认为很重要。患有心理健康问题的人往往对 PA 持更消极的看法。COVID-19 减少了 PA 的机会、COPD 治疗和社会互动的机会,与更多的恶化和情绪痛苦有关。总的来说,这项研究表明,迫切需要提高患者、公众和初级保健专业人员对 COPD 及其危险因素和管理的认识。我们为使用当地资源和跨部门伙伴关系在社区空间为 COPD 患者实施特定活动计划提供了重要的内容,制定公共政策。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/59ce/11511987/9e404a2b8115/41533_2024_386_Fig1_HTML.jpg

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