先天性巨结肠症患者有效过渡到成人服务的障碍
Obstacles to an Effective Transition to Adult Services for Patients with Hirschsprung Disease.
作者信息
Davidson Joseph R, Curry Joe
机构信息
UCL Great Ormond Street Institute of Child Health, London WC1N 1EH, UK.
Evelina London Children's Hospital, London SE1 7EH, UK.
出版信息
Children (Basel). 2024 Oct 14;11(10):1237. doi: 10.3390/children11101237.
Abstract
A growing number of patients with Hirschsprung disease are reaching adulthood, of whom a significant minority will require ongoing input from healthcare providers. In order to ensure patients receive the best care possible, it is essential to transition patients appropriately to adult services. This article describes the unmet need and some of the obstacles to this process and explores potential solutions, drawing on model examples for transitional care.
摘要
越来越多的先天性巨结肠病患者已步入成年期，其中相当一部分患者仍需要医疗服务提供者的持续关注。为确保患者获得尽可能最佳的护理，将患者妥善过渡到成人医疗服务至关重要。本文阐述了这一过程中未得到满足的需求和一些障碍，并借鉴过渡性护理的典型案例探讨了潜在的解决方案。
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