Ferrero-Sereno Patricia, Palomo-López Patricia, Mendoza-Muñoz María, Carlos-Vivas Jorge, Urbano-Mairena Javier, Muñoz-Bermejo Laura
Social Impact and Innovation in Health (InHEALTH), University Centre of Mérida, University of Extremadura, 06800 Merida, Spain.
University Center of Plasencia, University of Extremadura, 06006 Badajoz, Spain.
J Clin Med. 2024 Oct 17;13(20):6188. doi: 10.3390/jcm13206188.
Carers of people with Alzheimer's disease often have a high degree of commitment and dedication which may also compromise physical and emotional, leisure, and occupational self-care. This study aimed to explore health-related quality of life (HRQoL) and psychoemotional variables in caregivers with and without caregiver overload and its relationship. A single-measure cross-sectional correlational study was carried out involving 59 informal caregivers of people with Alzheimer's disease with a mean age of 59.30 (±10.58). The participants completed the adult HRQoL questionnaires (EQ-5D-3L), Zarit Burden Inventory test, General Happiness Questionnaire, Satisfaction with Life Scale, Rosenberg self-esteem scale, Occupational Balance Questionnaire (OBQ-E), International Fitness Scale (IFIS), Family Apgar scale, and Duke-UNC-11 Functional Social Support Questionnaire. A significantly higher level of HRQoL ( = 0.029) in subjective happiness ( = 0.018), perceived social support ( = 0.046), avoidance ( = 0.034), occupational balance ( = 0.002), life satisfaction ( = 0.037), and self-perceived physical fitness ( = 0.021) was found in caregivers without perceived overload. Also, HRQoL was directly associated with self-perceived physical fitness (β = 0.534; < 0.001) and occupational balance (β = 0.375; < 0.001) and self-esteem (β = 0.249; < 0.016). Caregivers who do not perceive overload have better levels of HRQoL and psychoemotional variables, establishing a relationship between HRQoL with self-perceived physical fitness, occupational balance, and self-esteem.
阿尔茨海默病患者的照料者通常具有高度的投入和奉献精神，但这也可能影响其身体和情绪、休闲及职业自我护理。本研究旨在探讨有无照料者负担的阿尔茨海默病患者照料者的健康相关生活质量（HRQoL）及心理情绪变量，以及它们之间的关系。开展了一项单测横断面相关性研究，纳入59名阿尔茨海默病患者的非正式照料者，平均年龄为59.30岁（±10.58）。参与者完成了成人HRQoL问卷（EQ-5D-3L）、扎里特负担量表测试、总体幸福感问卷、生活满意度量表、罗森伯格自尊量表、职业平衡问卷（OBQ-E）、国际体能量表（IFIS）、家庭Apgar量表和杜克大学-北卡罗来纳大学11项功能性社会支持问卷。未感到负担过重的照料者在主观幸福感（P = 0.018）、感知到的社会支持（P = 0.046）、回避（P = 0.034）、职业平衡（P = 0.002）、生活满意度（P = 0.037）和自我感知的身体健康状况（P = 0.021）方面的HRQoL水平显著更高。此外，HRQoL与自我感知的身体健康状况（β = 0.534；P < 0.001）、职业平衡（β = 0.375；P < 0.001）和自尊（β = 0.249；P < 0.016）直接相关。未感到负担过重的照料者具有更好的HRQoL和心理情绪变量水平，HRQoL与自我感知的身体健康状况、职业平衡和自尊之间存在关联。
