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探索慢性病管理中与共同决策相关的患者偏好

Exploring Patient Preferences Related to Shared Decision-Making in Chronic Disease Management.

作者信息

Alanzi Turki M, Alanzi Nouf, Majrabi Aisha, Alhajri Ahlam S, Alzahrani Lujain, Alqahtani Noura, Alqadhibi Abdullah, Alenazi Saud, Alsaedi Hatim, Alghamdi Eidhah, Bin Hamad Norah, Habib Walaa, Alharthi Nawal H, Alharbi Maher, Alyahya Nafad N

机构信息

Department of Health Information Management and Technology, College of Public Health, Imam Abdulrahman Bin Faisal University, Dammam, SAU.

Clinical Laboratory Sciences, Jouf University, Jouf, SAU.

出版信息

Cureus. 2024 Sep 25;16(9):e70214. doi: 10.7759/cureus.70214. eCollection 2024 Sep.

DOI:10.7759/cureus.70214
PMID:39463638
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11512003/
Abstract

Background and objective Shared decision-making (SDM) in healthcare has transitioned from a paternalistic model to a collaborative approach, particularly significant in chronic disease management. This shift focuses on aligning healthcare decisions with patient preferences and values, thereby enhancing patient engagement and treatment adherence. However, patient preferences regarding involvement in SDM vary widely, influenced by demographic, disease-specific, psychological, cultural, and social factors. This study aimed to explore patient preferences related to SDM in chronic disease management in Saudi Arabia, by assessing attitudes toward SDM, the impact of decision aids, and the role of clinician communication in influencing these preferences. Methods A cross-sectional survey design was employed, involving 409 adult outpatients with chronic diseases attending four public hospitals in Saudi Arabia. Participants were selected using purposive and convenience sampling. The survey, translated into Arabic, collected demographic data and information on preferences and experiences in decision-making, communication, and information sharing. The data were analyzed using SPSS Statistics (IBM Corp., Armonk, NY) to identify patterns and correlations. Results Key findings indicated a strong preference among the participants for involvement in treatment decisions (n=303, 74.2%) and clear communication using layman's terms (n=338, 82.6%). Major barriers to active participation in SDM included lack of time during appointments (n=275, 67.2%), difficulty understanding medical terminology (n=220, 53.9%), and feeling intimidated to ask questions (297, 72.6%). Comfort in SDM was highest in the age group of 41-50 years [mean=4.16, standard deviation (SD)=28.44; F=2.3287, p=0.0739]. Patient satisfaction was significantly higher in the age group of 18-30 years (mean=3.42, SD=1.09; F=3.0503, p=0.0284). Conclusions Our findings highlight the need for incorporating patient preferences into chronic disease management strategies to enhance engagement and satisfaction.

摘要

背景与目的 医疗保健中的共同决策(SDM)已从家长式模式转变为协作式方法,这在慢性病管理中尤为重要。这种转变侧重于使医疗决策与患者的偏好和价值观相一致,从而提高患者的参与度和治疗依从性。然而,患者对参与共同决策的偏好差异很大,受到人口统计学、疾病特异性、心理、文化和社会因素的影响。本研究旨在通过评估对共同决策的态度、决策辅助工具的影响以及临床医生沟通在影响这些偏好方面的作用,探索沙特阿拉伯慢性病管理中与共同决策相关的患者偏好。方法 采用横断面调查设计,纳入沙特阿拉伯四家公立医院的409名患有慢性病的成年门诊患者。参与者采用目的抽样和便利抽样的方法选取。该调查问卷已翻译成阿拉伯语,收集了人口统计学数据以及有关决策、沟通和信息共享方面的偏好和经历的信息。使用SPSS Statistics(IBM公司,纽约州阿蒙克)对数据进行分析,以识别模式和相关性。结果 主要发现表明,参与者强烈倾向于参与治疗决策(n = 303,74.2%),并倾向于使用通俗易懂的语言进行清晰沟通(n = 338,82.6%)。积极参与共同决策的主要障碍包括就诊时缺乏时间(n = 275,67.2%)、难以理解医学术语(n = 220,53.9%)以及因害怕而不敢提问(297,72.6%)。41 - 50岁年龄组在共同决策中的舒适度最高[平均值 = 4.16,标准差(SD)= 28.44;F = 2.3287,p = 0.0739]。18 - 30岁年龄组的患者满意度显著更高(平均值 = 3.42,SD = 1.09;F = 3.0503,p = 0.0284)。结论 我们的研究结果强调了将患者偏好纳入慢性病管理策略以提高参与度和满意度的必要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4bd4/11512003/17a11f3b78fc/cureus-0016-00000070214-i03.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4bd4/11512003/45bd0ce16ef2/cureus-0016-00000070214-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4bd4/11512003/1136eb20cd8a/cureus-0016-00000070214-i02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4bd4/11512003/17a11f3b78fc/cureus-0016-00000070214-i03.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4bd4/11512003/45bd0ce16ef2/cureus-0016-00000070214-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4bd4/11512003/1136eb20cd8a/cureus-0016-00000070214-i02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4bd4/11512003/17a11f3b78fc/cureus-0016-00000070214-i03.jpg

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