在全科医疗中早期识别家庭照顾者并衡量其负担的挑战:对可能工具及其实际应用的范围综述。

The challenge of identifying family carers in general practice at an early stage and measuring their burden: A scoping review of possible tools and their actual use.

作者信息

Marx Yvonne, Bauer Alexander, Frese Thomas, Unverzagt Susanne

机构信息

Center of Health Sciences, Medical Faculty, Institute of General Practice and Family Medicine, Martin-Luther-University Halle-Wittenberg, Magdeburger Straße 8, 06112 Halle (Saale), Germany.

出版信息

J Family Med Prim Care. 2024 Sep;13(9):3518-3528. doi: 10.4103/jfmpc.jfmpc_551_24. Epub 2024 Sep 11.

Abstract

Informal care, provided unpaid by family members or friends is a crucial source for providing care at home due to chronic illnesses, disability, or long-lasting health issues. An increasing burden on informal carers largely determines the already proven negative mental and physical health effects. General practitioners are usually responsible for recognizing the effects of persistent burdens on informal carers at an early stage to maintain a functional caring relationship by providing individual support. A scoping review was conducted in four databases (PubMed, LIVIVO, Cochrane Library, and Cumulative Index to Nursing and Allied Health Literature [CINAHL]) until July 31, 2023, to identify studies describing the actual use of tools to identify informal care and measure the burden due to informal care. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews (PRISMA-ScR) guidelines were followed to select studies. A total of 5.686 references were identified, and 59 potentially eligible articles were assessed for inclusion, resulting in the inclusion of five studies published between 2009 and 2019. Instruments were primarily used to measure burden after an intervention; only one study focused on instruments to identify carers in general practice. This review highlights the need for a tool to identify informal carers in general practice, but it is important to consider practice-specific processes and settings. Future research should take a proactive approach to testing, modifying, and implementing an assessment and optimizing framework conditions. A follow-up project should be initiated to evaluate the effectiveness of an adapted identification tool on the burden and health of family carers.

摘要

由家庭成员或朋友无偿提供的非正式照护,是因慢性病、残疾或长期健康问题而在家中提供照护的关键来源。非正式照护者负担的不断增加,在很大程度上决定了已被证实的对其身心健康的负面影响。全科医生通常负责在早期识别持续负担对非正式照护者的影响,通过提供个性化支持来维持有效的照护关系。截至2023年7月31日,在四个数据库(PubMed、LIVIVO、Cochrane图书馆和护理及相关健康文献累积索引[CINAHL])中进行了一项范围综述,以识别描述用于识别非正式照护并衡量非正式照护负担的工具实际使用情况的研究。遵循系统评价和Meta分析扩展的范围综述首选报告项目(PRISMA-ScR)指南来选择研究。共识别出5686篇参考文献,评估了59篇可能符合条件的文章以确定是否纳入,最终纳入了2009年至2019年发表的五项研究。这些工具主要用于测量干预后的负担;只有一项研究关注全科医疗中识别照护者的工具。本综述强调了在全科医疗中需要一种识别非正式照护者的工具,但考虑特定于实践的流程和环境很重要。未来的研究应采取积极主动的方法来测试、修改和实施评估,并优化框架条件。应启动一个后续项目,以评估一种经过调整的识别工具对家庭照护者负担和健康的有效性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5083/11504783/0195b9811bae/JFMPC-13-3518-g001.jpg

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本文引用的文献

[1]
[Informal caregivers in Germany: achieving work-life balance].

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2023-5

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