Wolfe Hannah, Shepherd Caitlin B, Boswell Rebecca G, Genet Jessica, Oliver-Pyatt Wendy
Within Health, Coconut Grove, FL, USA.
Department of Psychology, Smith College, Northampton, MA, USA.
J Eat Disord. 2024 Oct 30;12(1):171. doi: 10.1186/s40337-024-01127-4.
While some findings indicate high levels of patient satisfaction with remote eating disorder treatment, others reflect feelings of disconnection due to unique telehealth treatment challenges. The COVID-19 pandemic presented circumstances that likely impacted the findings established thus far. As such, the present study sought to understand patient experiences of connection in an intentionally remote eating disorder treatment program, specifically in a context outside of pandemic transition.
A secondary analysis of de-identified qualitative data previously obtained for quality improvement purposes via a client satisfaction survey was conducted. Adult patient responses (N = 38) were analyzed via reflexive thematic analysis within a critical realist framework.
Four themes were generated from the data: (1) Embracing one's humanity paves the way for connection, (2) Discovering a "sense of community" in remote care, (3) "They made me feel I was worth recovering": connection as a vehicle for healing, and (4) Aligning expectations and reality: reconceptualizing the journey to connection in remote eating disorder care.
Overall, findings suggest that it is possible for patients to form strong, impactful connections in remote treatment. Importantly, patient perspectives indicated that there were shifts in how these connections were experienced as a result of the remote care environment (e.g., how support could be provided and by whom). Considerations unique to remote care (e.g., offering training to improve clients' comfort with technology) may be important to fostering connection, thereby contributing to improved patient experiences and treatment outcomes.
虽然一些研究结果表明患者对远程饮食失调治疗的满意度较高，但另一些研究则反映出由于远程医疗治疗面临的独特挑战而产生的脱节感。2019年冠状病毒病疫情带来的情况可能影响了迄今为止已得出的研究结果。因此，本研究旨在了解在一个特意设置的远程饮食失调治疗项目中患者的连接体验，特别是在疫情过渡之外的背景下。
对之前为质量改进目的通过客户满意度调查获得的去识别化定性数据进行二次分析。通过在批判实在论框架内的反思性主题分析对成年患者的回答（N = 38）进行分析。
从数据中生成了四个主题：（1）接纳人性为连接铺平道路；（2）在远程护理中发现“社区感”；（3）“他们让我觉得我值得康复”：连接作为治愈的媒介；（4）调整期望与现实：重新认识远程饮食失调护理中的连接之旅。
总体而言，研究结果表明患者在远程治疗中有可能形成牢固且有影响力的连接。重要的是，患者的观点表明，由于远程护理环境，这些连接的体验方式发生了变化（例如，支持如何提供以及由谁提供）。远程护理特有的考虑因素（例如，提供培训以提高患者对技术的舒适度）可能对促进连接很重要，从而有助于改善患者体验和治疗效果。
