照顾者身份干预措施的可接受性测试，以支持智障人士和多重智力残疾人士的家庭照顾者的心理健康。

Acceptability testing of the Carers-ID intervention to support the mental health of family carers of people with profound and multiple intellectual disabilities.

机构信息

School of Nursing and Midwifery, Queen's University Belfast, Belfast, Northern Ireland.

School of Health and Wellbeing, University of Glasgow, Glasgow, Scotland.

出版信息

PLoS One. 2024 Oct 31;19(10):e0313081. doi: 10.1371/journal.pone.0313081. eCollection 2024.

DOI:10.1371/journal.pone.0313081

PMID:39480903

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11527193/

Abstract

BACKGROUND

Providing care and support for a person with intellectual disabilities can be challenging and may negatively impact on family carers' health and wellbeing. A online support programme was co-designed with charitable organisations and family carers, to help meet the mental health and wellbeing needs of family carers.

OBJECTIVE

To test the acceptability of a newly developed online support programme for carers of people with profound and multiple intellectual disabilities.

METHODS

A sequential mixed-methods explanatory design was utilised. An adapted version of the Acceptability of Health Apps among Adolescents Scale was distributed to family carers across the United Kingdom and Ireland who had viewed the Carers-ID.com intervention. Participants were then invited to take part in an online interview. Qualitative and quantitative data were analysed separately and then brought together through the triangulation protocol.

RESULTS

Seventy family carers (47 female, 23 male) responded to the acceptability survey, with 10 (7 female, 3 male) taking part in interviews. Carers expressed high levels of programme acceptability (mean = 75.43 out of 88). Six themes were generated from interviews with family carers; i) time is precious, ii) the breadth and depth of module content, iii) it was somebody's experience; it was meaningful, iv) won't work for everyone, v) representation: people I could identify with, and vi) module specific suggestions for future changes. Based on our triangulation, four areas of convergence were identified: programme usability and ease, attitudes towards the programme, perceptions of effectiveness, and programme relatability.

CONCLUSIONS

To be acceptable, online interventions for carers of people with intellectual disability need to be accessible, understandable and easy to use, as carers' free time can be limited. It would be important to investigate the effectiveness of online interventions for family carers, specifically considering which carers the intervention works for, and for whom it may not.

摘要

背景

照顾和支持智障人士可能具有挑战性，并可能对家庭照顾者的健康和幸福感产生负面影响。一个在线支持计划是与慈善组织和家庭照顾者共同设计的，旨在满足家庭照顾者的心理健康和幸福感需求。

目的

测试为智障人士的家庭照顾者新开发的在线支持计划的可接受性。

方法

采用顺序混合方法设计。在英国和爱尔兰，向观看过 Carers-ID.com 干预措施的家庭照顾者分发了经过改编的青少年健康应用接受度量表。然后邀请参与者参加在线访谈。定性和定量数据分别进行分析，然后通过三角测量协议结合在一起。

结果

70 名家庭照顾者（47 名女性，23 名男性）对可接受性调查做出了回应，其中 10 名（7 名女性，3 名男性）参加了访谈。照顾者对计划的接受度表示高度认可（平均值为 88 分中的 75.43 分）。从与家庭照顾者的访谈中得出了六个主题；i）时间宝贵，ii）模块内容的广度和深度，iii）这是某人的经验；有意义，iv）不适合每个人，v）代表性：我可以认同的人，和 vi）对未来更改模块的具体建议。根据我们的三角测量，确定了四个收敛领域：计划的可用性和易用性、对计划的态度、对效果的看法以及计划的相关性。